Getting sick of being busy

Dear Bloggers, 
 
My thoughts are spinning through my head as I write this down tears are running down my cheeks. It is very sad how beloved persons are slipping through our fingers. The brain is a strange peace of equipment and it can do strange things. I just drove home from a night shift as my mind was running around in circles.

Thinking about the roller coaster life that I am leading. Outside there is nothing left of the summer weather as rain bashes on my screen and the smell of a died out fireplace enters the car. My wife is having trouble again with her anxiety, our kids went to new schools this week and my mother in law has been taken into care as she is suffering from Parkinson's an Dementia my father in law is not able anymore to take the full day and night care of her. It is pretty tough for both of them. But the home were she stays is giving her good care.

Dementia is often viewed as a disease of the mind, an illness that erases treasured memories but leaves the body intact.

But dementia is a physical illness, too and a progressive, terminal disease that shuts down the body as it attacks the brain. Although the early stages can last for years, the life expectancy of a patient with advanced dementia is similar to that of a patient with advanced cancer.
 

The continued focus on treatment to prolong life often means that pain relief is inadequate, and symptoms like confusion and anxiety are worsened. I think it suggests that family members would be far less likely to subject their loved ones to such treatment if they had a better understanding of dementia as progressive, debilitating illness that ultimately shuts down the body after years of mental deterioration.

“When family members understand the clinical course of dementia and the poor prognosis, the patients were far less likely to undergo these distressing interventions,” I would say that: “Dementia is a terminal illness and needs to be recognized as such so these patients receive better palliative care.”
Our mother in law is suffering from Parkinson's disease and to me there are a lot of similarities to Alzheimer's. 

As a teenager, I saw a neighbour decline from Alzheimer's disease. During his final months, he was repeatedly treated for infections and put in restraints or sedated to control agitation.

“Seeing my mother in law in that state is so distressing that I will eventually stop taking the grandchildren to visit,” Simply transferring a dementia patient from the nursing home to a hospital can lead to confusion, falls or a decline in eating which in turn, often leads to further treatment.

Geriatricians say a large part of the problem is that the patients are unable to make their wishes known. In the absence of a living will, family members often struggle with guilt and are afraid to stop the aggressive treatment because they do not want to be seen as abandoning a loved one in mental decline.Doctors need to spend more time explaining the prognosis for advanced dementia, making it clear that palliative care does not mean less care. 
 
When I go there on a Sunday to visit my mother in law and take her for a strawl, I enjoy the home that breathes slowly and reminds me that on the outside of this building the real crazy people are running around in circles. Driving in a full panic state with their SUV with the kids in the back to all kinds of sports. That is why I do not like the pressure were we are under nowadays.

I saw a dear friend a few days ago. I stopped by to ask her how he was doing, how his family was. He looked up, voice lowered, and just whimpered: “I’m so busy… I am so busy… have so much going on.”

Almost immediately after, I ran into another friend and asked him how he was. Again, same tone, same response: “I’m just so busy… got so much to do.”
The tone was exacerbated, tired, even overwhelmed.

How did we create a world in which we have more and more and more to do with less time for leisure, less time for reflection, less time for community, less time to just… be? Welcome to the land of Burn Outs.

This disease of being “busy” (and let’s call it what it is, the dis-ease of being busy, when we are never at ease) is spiritually destructive to our health and well being. It stops our ability to be fully present with those we love the most in our families, and keeps us from forming the kind of community that we all so desperately crave.

Since the 1950s, we have had so many new technological innovations that we thought (or were promised) would make our lives easier, faster, simpler. Yet, we have no more “free” or leisurely time today than we did decades ago.
For some of us, the “privileged” ones, the lines between work and home have become blurred. We are on our devices. (getting the bended neck syndrome) All The Freaking Time. Smart phones and laptops mean that there is no division between the office and home. When the kids are in bed, we are back online.

The reality looks very different for others. For many, working two jobs in low-paying sectors is the only way to keep the family afloat. Twenty percent of our children are living in poverty, and too many of our parents are working minimum wage jobs just to put a roof over their head and something resembling food on the table. We are so busy.

The old models, including that of a nuclear family with one parent working outside the home, have passed away for most of us. We now have a majority of families being single families, or where both parents are working outside the home. It is not working. It is modern slavery to pay all the bills from the tax office etc.

It doesn’t have to be this way.
I am not asking how many items are on your to-do list, nor asking how many items are in your inbox. I want to know how your heart is doing, at this very moment. Tell me. Tell me your heart is joyful, tell me your heart is aching, tell me your heart is sad, tell me your heart craves a human touch. Examine your own heart and explore your soul, and then tell me something about your heart and your soul.

Tell me you remember you are still a human being, not just a human doing. Tell me you’re more than just a machine, checking off items from your to-do list. Have that conversation, that glance, that touch. Be a healing conversation, one filled with grace and presence.


We need a different relationship to work, to technology. We know what we want: a meaningful life, a sense of community, a balanced existence. It’s not just about “leaning in” or faster iPhones. We want to be truly human.
How exactly are we supposed to examine the dark corners of our soul when we are so busy? How are we supposed to live the examined life?

Somehow we need a different model of organizing our lives, our societies, our families, our communities. I want my kids to be dirty, messy, even bored and learning to become human. I want us to have a kind of existence where we can pause, look each other in the eye, touch one another, and inquire together:


Let us insist on a type of human-to-human connection where when one of us responds by saying, “I am just so busy,” we can follow up by saying, “I know, love. We all are. But I want to know how your heart is doing.”

The Old Sailor,

If your partner is breaking down at work

Dear Bloggers,

It has been awhile as last year didn't finish that good for all of us. That is also the only reason that I haven't been very active on writing on my blog. I apologize and hope that I will find a little more time to share my stories. Today I will write about the hassle that my spouse has with her direct manager. Who turned all of a sudden a nice working environment into a hell gate. It all started approx. A half a year ago as it was time for the annual assessment. She somehow was not doing it right according to her manager and she needed to write a coachingsplanning for that. So I helped her out with making the planning. But her boss then does nothing with this planning and put it aside. It was probably too much work for him.

 

For many weeks she has skirted, danced, boggled and boogied around it and kinda explained why it happened but never really gone into much “depth” as in: what happened, how it happened, how it felt. So I got bored, I have a few hours, am tired of talking to my wife and that is why I am gonna blabber here for a while. As my wife is sleeping as she is tired and feels very empty. Our conclusion is a work burnout or even a “nervous breakdown”?
You could also call it an emotional breakdown or perhaps a mental breakdown, but in essence a “breakdown” has occurred when someone becomes unable to deal with normal day-to-day life.

It can be ignited following a particular trauma, a series of events, or can even happen randomly and out of the blue with no precipitating identifiable cause.
“Nervous breakdown” isn’t even a medical term because a breakdown is far more easily accepted than bipolar, depression or anxiety; it is stigma at work!
A breakdown generally occurs when your circuits become overloaded. Your brain, heart, soul, emotions whatever you are under so much stress that they short circuit, and then shut off, and then you can’t find a nice clean unbroken fuse to mend them.

A manager who brings you down so much that he was discussing with her to quit her job which set in motion a chain of events which would cause her to lose her income, her best friends and all of this happening whilst she was suffering from a new kind of medication for her lungs. As her asthma is becoming a pretty serious physical illness which could have killed her if there would have been no intervention.

I think any one or two of those things could have the power to trigger a breakdown, but to have so many stressful emotional events hitting you when you are already physically, mentally and emotionally devastated from your asthma and a boss that's on your neck. Will get you into a breakdown doesn’t surprise me.

Let me try to explain to you what happened.
The day my spouse realised something was seriously wrong was the Tuesday she spent working with a coachingsperson that gave her the last emotional hit and then she snapped. She totally lost it and was on an obvious level for several hours before sitting down with her boss. Who was telling her that she did not belong here as she was worse than a new trainee it was like she was stinged with a flaming stick. Now I had wanted to phone someone at this point, I knew something was brewing and I was worried as this will not be a happy ending. 
 

She spent the next day glued to the bed, unable to move, she came out of bed as she had to get the kids to school and she evaded the actual events which had happened the day before. I thought that by reading and over thinking them I would be able to forget them. I would be able to make her forget about this nasty thoughts. She was browsing on her mobile phone all day to find a solution for all her problems. I told her it is better really to speak to someone. 


On the Wednesday she crawled to the job again, on the Friday I saw her totally crashing and I played the psychologist again, on the Saturday she fled into painting the walls.
After that week the specific days have become blurry, everything is just a mess in her mind. I know I know that she fought herself I know she has tried to rebuild her life, I know I played the occasional psychologist, I know I tried to do anything and everything that I could to fight what was happening to her and help her to get our lives back to something that we were able to enjoy.

Her decision making capacity was shot to fuck, her conversational ability had gone; (and yes she normally talks a …..lot.) anxiety, depression, were showing itself more and more The fact she had overcome all of this only a few months before contributed to the continuation of her depressive episode with her lungs!

I don’t think anyone can truly understand what having a breakdown feels like unless they have experienced one. Like depression and burn out “breakdown” is an overused word and does not in any way fully describe the pain and torment your mind is constantly under. You literally cannot function on a normal day-to-day level; your body is besieged with physical pain and your mind is engulfed with the sort of emotional pain I would never wish on anyone.

Relationships and Friendships following a breakdown…
One of the hardest things she had to deal with was being told repeatedly that who she thought were her friends were not really her friends (an example of being isolated by her abuser) and wouldn’t be there for her. Thus she was unable to talk to them about what she was going through as she was afraid of pushing them away which was inevitably going to happen anyway and so had to fight her breakdown alone.
 
After a breakdown your self confidence and self worth will be virtually non-existent, thus your ability to retain friendships and relationships will be put under further strain. As you are not thinking clearly your actions may cause harm to those people you care about, even if it is inadvertent, so you may need to apologise for anything which happened during the breakdown and work on rebuilding those friendships.
Although you will need to work out whether the problem was caused by you, or by them, if it was their problem they will need to find a way to deal with it as you should not have to accept responsibility.

At this moment she can’t sit here and talk about friendship really, At the moment she doesn’t have any, and as she is still fighting her breakdown. I cannot give profound advice on healing rifts and repairing damage.
I will say however that, like everyone, a show of kindness and love can help someone who has suffered from a breakdown. We all want to feel loved, we all need kindness, to help us get by.

Can you overcome a nervous breakdown?
The breakdown my wife experienced earlier was absolutely the most painful, distressing, chaotic and fear inducing period of her life. She literally just couldn't think straight in any way, her brain shut down and wasn’t functioning on any level. It was a constant daily fight to get through each conversation, each hour, each day. And that is pretty exhausting.

The road to recovery following a nervous breakdown is hard work, it could take you anywhere from 6 months to 3 years to fully recover. It can be done however, it’s not going to be easy, pretending it isn’t there won’t help but just cause longer term problems, it’s going to be painful, destructive and the hardest fight of your life.
But it can be done, never lose hope of that.

As City to city sings: The road ahead is empty
It's paved, with miles of the unknown
Whatever seems to be your destination
Take life the way it comes, take life the way it is

The Old Sailor,

When is it time to give up the keys?

Dear Bloggers,

This blogs subject is about driving and Parkinson's Disease

As baby boomers age and life expectancy rises, increasing attention is turning on how to determine when and if older people and people with severe health problems should stop driving. This topic is especially important in light of a agtng group in our country as a lot of them are on the search for injury prevention and we should get in control that our elderly people are involved by vehicle injuries. As the number one cause of injury related deaths for people aged 65 to 74, and the number two cause (after falls) of injury

related deaths for those aged 75 to 84. The issue that hits home for people with Parkinson's since both the symptoms of the disease and the medications designed to ease them can affect driving ability. If you are struggling with the decision of whether or not to stop driving, or if you are a caregiver for someone who is wrestling with this problem, this blog may help you explore your options.
 

 
How does Parkinson's disease affect driving?

People with Parkinson's disease may eventually experience a decline in both motor skills and cognition. These problems can make driving unsafe. For example, a decrease in visuospatial skill. Let me explain:This is the kind of skills that are necessary to determine distance and distinguish shapes which is not uncommon in Parkinson’s Disease. A driver with decreased visuospatial skills may be unable to gauge the distance to a stop sign or a traffic light or keep a car in the correct lane. Some people with Parkinson's also may have cognitive difficulties and at times become confused. 

Unfortunately, patients with dementia may not realize that their driving has become a problem and must rely on a physician, family members and friends to bring it to their attention. Another common symptomatic problem for people with Parkinson's is muscle tightness, which can make reacting quickly difficult. Delayed reaction time is dangerous because drivers need to be able to react swiftly, both mentally and physically, to avoid accidents and adapt to changing traffic patterns.

Additional complications come from the medications that are used to treat Parkinson’s Disease. Common medications including carbidopa/levodopa (Sinemet), amantadine, dopamine agonists and anticholinergics may produce side-effects such as sleepiness, dizziness, blurred vision and confusion. Anticholinergics are especially dangerous as they can cause confusion and sedation along with memory impairment. However, not every patient experiences these side-effects and they may be decreased with simple adjustments in dosage. You should note any changes and report these to your physician. It is your life and you decide.

 Assessment options for people with Parkinson's

It is important to remember that while not every person with Parkinson's experiences problems with driving, disease symptoms and treatments can make driving dangerous for you and others. Driving is seen as a priveliged right of independence and freedom and you may be reluctant to stop, but being responsible is also important. To help you determine your driving risk, the medical association advice is to report your Parkinson’s at CBR (the Dutch bureau for driving licences) Especially for older drivers with difficulties in traffic and they can give extensive information about diseases that may affect driving ability, such as Parkinson's. Although these guidelines were developed primarily for doctors, it will help laypersons to make their own assessment of their driving ability and determine a course of action.

The question is: “Am I a Safe Driver?” If you just take a driving lesson just to help you evaluate your driving. If you score poorly on this and you are still reluctant to stop driving, refer to the driving school to get some tips for safe drving and really consider speaking with a doctor about the issue. The doctor can run some tests on cognition, mobility, reaction time and visual ability for physicians to perform on patients to determine if a person is driving safely. Yes you might not only kill yourself but also someone else!

A less costly, although less thorough, option is to enroll in a driver safety class, such as the driving  schools are offering to elderly people. While these classes are not specifically tailored for people with Parkinson's, they can provide helpful tips for safe driving. An instructor will lead the class through various ways of enhancing driving skills and safety but often will not make individual assessments.
Finally, you can always visit the CBR and ask to take a driving test. Of course, if you were to fail the test, your license would be revoked.

What can family members and friends do to help?

Understandably, most people are reluctant to give up the opportunity to drive. Because of this, it is often up to family members and caregivers to spot a problem first. If you are a family member or caregiver for a person with Parkinson's and you think it may be time for them to stop driving, remember that this is a very sensitive issue and you must help the person see that his or her driving has become dangerous. Before bringing up the subject, look at the possibilities how to help this older driver, being prepared as they have a million excuses to keep their freedom which is extremely relevant for Parkinson's patients. This can help you determine if your concerns are valid and how you might address them.

Another way to help your loved one with this decision is by stressing that giving up driving does not mean giving up mobility. Your support is crucial in helping a person with Parkinson's admit that his or her skills have decreased without feeling stripped of power. To help people with Parkinson's with their decision to stop driving, provide them with transportation alternatives. The Getting by Without Driving tip is to highlight all other possible modes of transportation, including a partner that is still able to drive, taxis, buses, subways and getting a ride from family members. Some cities also provide travel assistance for people unable to use public transportation. (We got something that is called the Plusbus.) If you know someone with Parkinson's who has had to give up driving, provide him or her with bus routes, taxicab phone numbers, and offer to give rides. For more transportation alternatives, check on the internet for options in your region.This may help a person with Parkinson's to adjust and realize that stopping driving does not mean losing independence.

What's the bottom line?

Having Parkinson's does not necessarily result in giving up driving. However, whether you are a person with Parkinson's or a loved one, it is important to be responsible and remember the potential dangers that Parkinson's presents to driving. Ignoring the effects of the disease and its medications on driving will only create a more dangerous environment for you and other drivers. The best way to be a responsible driver is by paying attention to your driving skills and reporting any changes to your physician. If you have concerns, don't avoid voicing them out of fear of losing your license. Doctors and family members are often happy to help you exhaust rehabilitation options before asking you to give up driving. If it does come to the point where family, doctors and driving coaches ask you to give up your keys, realize that it is in your best interest to stop driving and explore other transportation options. They love you and don’t want to loose you.

The Old Sailor,
 

Old Sailor on a mission

Dear Bloggers, 

The Old Sailor has become a man on a mission. Since his little girl was diagnosed with a behavior disorder at 8 years of age, together with his wife he has worked tirelessly to get our daughter the best possible intervention. Today we are getting help from some professionals.

You are making a difference just remember this: You are a parent, not a doctor or a scientist.

But, when it comes to your child, you are an expert. You know that little face and whether it lights up when you walk into a room. You know your child's babbling voice and would be the first to notice if it suddenly fell silent. You know how she behaves when she sees a new toy, meets a new child, goes to a birthday party, or visits a shopping mall. You know what makes her cry and what makes her laugh. You've seen children playing in parks and squabbling at family dinners. You've seen her as a baby playing peek-a-boo and playing house. And you wouldn't be a parent if you had not compared your child with other children.

Of course, not every difference is a disorder. Far from it. But if your instincts are telling you something is wrong, that something about your child is quite different from other children or that something essential about your child has changed or become increasingly troubling, your instincts are probably right.You know when something is wrong. Children with anger outburts have parents who are persistently worried about them. So, if you are worried about how your child is reacting and behaving, you should take your worry seriously. It could be a warning sign.Parents have been diagnosing their children from early on. They know it, they feel it. They say it all the time, "I just know something's just not right . . . the way she does this or the way she does that . . ." And they're right, usually.

Some parents whose children are eventually diagnosed with a disorder realize that their children were different as babies. A few notice specific, clear-cut problems; many others have nagging, vague concerns that are harder to express.Other parents see signs accumulate over time or appear suddenly. When doctors ask the right questions, worried parents almost always speak up. And, once their child is diagnosed with a problem, even those parents who do not express their worries at first usually say that they knew "something was wrong." Often they "just burst into tears" when their fears are confirmed.

Still, you may believe that what you know about your child pales in comparison to what seasoned pediatricians, family physicians, and nurse practitioners know about the science of development. If you've taken your child to every routine checkup and gotten a clean bill of health, you may feel that's reassurance enough. Unfortunately, that's not the case. While most health professionals do a good job of assessing physical development and try to measure cognitive growth, far too few know how to assess social and emotional development or how to interpret the early behavioral signs of disorders like for example autism. Some well-meaning doctors ask about these topics, but use the wrong questions. Others rely on their own, too-brief observations. And, unfortunately, far too few children with developmental delays and disorders get the early, intensive help that could put them on a healthier path.

The good news is that you can do something about this. You already know a lot about your child. You are about to learn a lot more about how to assess your child's social and emotional development and how to get prompt help if it's needed. 

The pediatricians take seriously their responsibility to follow a child's development. They are not annoyed or put on the defensive when parents, often armed with questions gleaned from a stack of books or the internet, want to talk about their children's social and emotional development. We were advised to see a specialized group pediatricians and caretakers that are taking tests in a playful way with your child and try to diagnose what the problem might be.
 
We eventually found this more knowledgeable pediatrician. And so can you. Ask other parents and your family physician for recommendations. When you hear of a good prospect, schedule a time to go in and talk with him or her, preferably without your child along. If you choose a practice and later become dissatisfied, try again. This process can be time-consuming, but will be well worthwhile, especially if your child has a problem with behavior. Ideally, you will find a pediatric practice where:

*developmental screening and observation are a routine part of every well-child visit.
*doctors get to know the children under their care. That means that your child usually sees the same physician or nurse practitioner, whether for sick or well visits.
*other staff members are accessible and helpful. Believe me, one helpful receptionist or nurse can make a huge difference should your child need complicated care.

It  all comes down to you. The truth remains that no matter how good your pediatrician is, you are your child's best observer and greatest champion. You are the gatekeeper, the person who stands between your child and the rest of the world, deciding which experiences and people to invite in and which to try to keep out. For parents of typically developing children, being a gatekeeper means choosing the best preschool or the most nurturing nanny. It might mean banning certain TV shows or toys. If that's your situation, you may have to work especially hard to get what your child needs.

For parents whose children turn out to have challenges, being a gatekeeper means all that and much more. It means choosing the people who can best help you and your child to navigate an often uncertain path toward the best possible outcome. It means working with those people to decide what is best for your child, but often making the final decisions yourself. It means becoming a true advocate.
Never forget, you are uniquely qualified. You know more, and care more, about your child than anyone else. All you require is a little more information and a few more skills. So, learn more about why it's so important to act on your concerns and then take action.
Your child is depending on you. 

The Old Sailor,

If behaviour becomes a problem

Dear Bloggers,

Due to the fact that I was busy working Idid not find the time last week to write a blog story, but in the mean time anyway carried on. And I had a progressive talk with my doctor and the schooldoctor about my youngest daughter. As my daughter has outbursts of agression that are destructive to other family members and she is not afraid to use things as a weapon. For example her five year older sister was having an argument with her and was beaten with a stick by her. When I asked her were this is coming from she talks about a voice in her head.

The strange part of it is that it can be triggered by the most ridicilous things that you would  say to her. I told her last week that an event was changed in date due to not enough participants. First of all she was confused about it and then she bursted out in total anger and ripped up a toy totally. You can read in her face that at this moment there is no chance to make any contact to her. This kind of behaviour is very odd to me.

Managing children’s behaviour can seem a Herculean task when they begin to realise how much fun getting into trouble can be as in many cases kids want to have the attention and they will definitely get it. However, parents will often yell themselves hoarse or tear their hair right out of their head, without it making one bit of difference. Rather than simply punishing children, which is often as hard on a parent as it is on a child and more often retributive rather than informative, the doctor told me to consider making a behaviour management plan.

Defining the Problem Behaviours

Before a behaviour management plan can be put into practice, problem behaviours must be identified. Problem behaviours are those that parents would like to see changed because they are inappropriate for the child’s age or stage of development. Problem behaviours can be small annoyances (thumb sucking), embarrassing (public temper tantrums) or even dangerous (hitting, kicking or biting others). Some children will also display a variety of behaviours at the same time, such as yelling, breaking things and kicking others during a temper tantrum. A good behaviour management plan will take into account all of the problem behaviours.

Observe the Problem Behaviours

In addition to knowing which behaviours are problematic, we as parents must also understand why and when these behaviours occur. Observing a child to see if there are any themes in where behaviours occur, if behaviours occur when certain people are or are not around, when behaviours occur and the consequences that these behaviours bring with them will help you to understand how in the best way to target and modify these behaviours in a behaviour management plan.

Set Goals

When behaviours are identified and “understood,” goals should be set for the behaviour management plan. Both short term and long term goals should be delineated so that the plan can be assessed both during and after its use. Short term goals can be daily, weekly or even monthly. Most long term goals should be no longer than one year, and should not seek to eradicate behaviours completely. For example, thumb sucking may die out within a year but it is also a comforting gesture that a child may turn to in a time of high stress after the year is out. This does not mean that the behaviour management plan has failed.

Decide on a Path

When goals have been set, the behaviour management plan must be fleshed out. Deciding how to manage or modify behaviours is key. Will it be through positive reinforcement, negative consequences or a combination of both? What will the positive reinforcements be? (together with my daughter we have decided that we mark on the calender her behaviour and a week of no trouble means a new book as she loves to read.) What methods of discipline will be used as negative consequences? (this means been send to the staircase and sit there for a while to think about what you have done, this method we have been using from the beginning.) How long will these decisions stand before they must be reviewed? These are all questions that should be considered when a behaviour management plan is being devised. Professional educators and child development experts will likely be able to help, if needed.

Get Started

When a behavioural management plan is complete, it does no one any good unless it is put into practice. Explain decisions to the child, so that she understands that from now on the target behaviour is unacceptable and there will be consequences if it does occur. If possible, start the plan on a Sunday or a Monday so that each week brings a clean slate. Be sure to celebrate major milestones throughout the plan (weekly and monthly “anniversaries”) and don’t be afraid to have a celebration for ultimate success. This week she finally succeeded and earned her first book. That means that we finally have booked some succes but at least there is hope.

The Old Sailor,

The day that I nearly lost everything.

Dear Bloggers,

So here's the scenario. About a year ago I was diagnosed with Fibromyalgia and I did get the the Talk. The doctor in question gives a lot of these talks, and is determined that we shouldn't miss a single word. We are shown a figure with red dots for the trigger points, and she begins to describe what's happened, in mind-numbing detail. I mention that I'm a guy that learned some Latin and Medical terms had my interrest for a long time, and I knew about Rheumatic problems already quite a few things as I have been strawling through medical books and of course on the internet. We have to listen. To all of it. She is, she tells us, the expert, and no-one for miles around knows as much about Rheuma as she does (My doc at home does probably know nothing at all at least I share that opinion).

I kind of loose my temper a bit as I realize that I am stuck on this bloody sickness for the rest of my days, The doc ignores me and disappears for a short while. We might need her again in the future whispers my wife and I am ashamed of myself. Due to the fact that there will be not much progress in the coming year, I will definately lose my job and have less income. My boss is giving me notice and I can sense that this is difficult for both of us. I had so much fun doing this job but my body decided in a hard way that this was not going o work any longer. I hated myself for quite a while and had to get my feet back on the ground and suite myself with a new style of living. A slower and more balanced life would do myself good. I will compare to someone that is stuck in a body of an eighty years old man who has been working hard all his live but now his worn out body is holding him back due to pain all over. Accepting it is not that easy, the pain is something you learn to live with. My wife told me one day that no one is getting happier when I am complaining, I guess that she was right so I stopped doing that.

The doctor returns, I apologise very nicely (as I have been instructed by my wife), and we proceed. We are told again that we need to come back for some more tests on Monday. We are given some booklets to read ourselves and that was it. Totally devistated we leave the doctors room. All of a sudden some horrific pictures of the worst case scenario run through my brain (a man like me with what looks like a wheelchair and his head is hanging down on his chest; I'm still not sure what that was supposed to be).

In the time being at home, I worked myself back up to certain level and got back to work. I started a job to become a bus driver on a commuters bus for the summer season. If it would not work out with my body and brain, I could simply pull the plug as I am hired through a temps office. In the beginning it was hell as I had to stick a lot of information into my brain which was still foggy due to the amount of medication that I have been using to settle the pain level. I look at it as a drug user that becomes clean, that also takes a couple of weeks before the brain is clear again. 

The money is coming back in although the amount is lower and deducted from my dole money of course. Our holiday? we can simply skip as I am hired for the summer season. Again I feel tears burning as I cannot spend money on my loved ones. That's ok, says she and my kids are fine with it, I still feel like that I am failing somehow. We cannot go on our holiday, maybe next year. Whe sat down one evening when I was still home, we decided to sell this beautiful house and buy something a bit smaller as cleaning and doing the garden became to much for me and for my wife it is too much too handle on her own. Certainly we like to get a reasonable price for it, but still it is not been sold. But what about the housing market after the recession banks do not dare to take any risks anymore. In the mean time we are still living here and although the garden is getting more and more a mess. I mow the lawn and my eldest daughter is helping me with it. The rest of the garden is not in a great condition. Ah, That's ok, because we can sell it for abit less and move on. Hmmm......sounds like my wife gave up on it too. We have seen a nice house on internet with enough space for all of us and with a suitable garden. We would get on a lower mortgage and we could save a few euros to go out for a long weekend. That would be at least long enough for me. 

Well, at least we can sit at home and read... 

The Old Sailor,