Showing posts from July, 2009

Open Letter about Fibromyalgia

Dear Bloggers, As I became active on a Dutch forum about FM, I found this letter and had the feeling that I should share this with you. Just to get you a better picture of what I feel. Do not worry I have translated the letter from Dutch to English so do not hang me up on small spellingmistakes. And as we all know that life is brutal, but still there is no reason to let your head hang down. This how I look at real friends: a friend is someone who dances with you in the sunlight and walks beside you in the shadow as that is all what live is about.
Open letter to people who do not have Fibromyalgia: If you have Fibromyalgia, it means many things change and that many of these things are invisible. It is not visible as a paraplegic. Most people do not understand even a small bit of what it is to have FM and living with the effects it has on your life. People who think that they understand what you have are normally poorly informed. To be informed, and who can understand? ....... There are c…

Perpetuum Jazzile - Africa (live, HQ)

A good friend of mine cheers me up on rainy days and he was sending me this video. Amazing how they do it, a good example that the credit crunch is there. They probably did not have any money for instruments. I would say sit back and relax, close your eyes and enjoy this masterpiece.

The Old Sailor,

Kylie Minogue - I Should Be So Lucky

I should be so lucky part 1

I should be so lucky part 2

Dear Bloggers,
OPINION:The road to hell may well be paved with good intentions, but nobody told me that you would have to listen to a chorus of whingers along the way.
I was listening to the Radio the other day and they were discussing how we were sliding of slowly towards some sort of hell and there was no way we would ever look back on these present times as the "good ol' days" like they had back in the fifties and sixties.
What a load of ….....
We all know about the 'glass half full or glass half empty' metaphor and I hesitate to suggest that the current level is starting to be unreflective of the unimaginable bounties that we currently possess.

In other words, our glasses are almost full and too many of us are nagging about the bit that we are missing at the top.
I started writing my blog today as I wanted to expound on some of the more positive things that are going on.
Well, today I wanted to write about how incredibly fantastic it is to be alive in this modern…

How to live positive with Fibromyalgia

Dear Bloggers,

Or how to look on the bright side when you are in pain everyday... While we can never remove them completely, We CAN break the chains of Fibromyalgia!
Dealing with constant daily pain is... well, to state the obvious... a real Pain!
When you are in pain, the whole world becomes dark and dreary, this is a dismal place to live.
You hurt to even put your clothes on in the morning...It is hard to enjoy life when even a loving hug is painful!
Fibromyalgia is a painful condition. Everyone experiences pain, so those of us who are stuck with it, or another chronic pain condition, all to often, get very little support from our family's, who may feel that we are being over sensitive or simply love creating drama.

I explain Fibromyalgia like this.
Take 5 clothes pins (you know the old fashioned wooden kind with the metal spring)...Place one clothes pin on each finger...for a little while it is tolerable...But keep them on longer and they become painful...Keep them on your fingers lo…

Holiday Fun?

Dear Bloggers, Our country is hardly moving, or at least not so fast anymore. We live these days in a whirl. On the edge of pulling through the last bits or they are at least dreaming away about what will happen. However, many also are concerned about what will happen. Will I be fired after the holiday or am I another victim of the Mexican flu? According to experts, the recession and the flu will show themselves from their worst side soon. It can be seen in their faces. Some are looking pale, despite the fact it is already high summer for weeks. Others are brown tainted and sitting relaxed behind their desks. Just work for a while, and then we really are going on a holiday. However, the open-mindedness is something that is far gone this year because now the exciting places may be hazardous this time. And then the idea that the holidays might be the last ones Mom or Dad gets unemployed. This in relation with the stranglemorgage they can not cough up moneywise. In the street you start t…

They call me fibromyalgia

Dear Bloggers,
Let me introduce you to my new companion in life.
I found this on the Dutch fibromyalgia site and translate it, as it comes quite close to my feelings.
Now they gave it a name and now the fight against it finally begins.

I am an invisible disease.
I am now with you for the rest of your life.
Others around you to see me, but your body feels me.
I can attack you when and how I want.
Also I can take care of you by giving severe pain attacks.
And if I'm in a good mood I can even ensure that you have pain.
Remember that you did a lot with your energy and had a lot of fun?
Well, I took that energy away from you and gave you fatigue instead.
You now also trying to have fun, but I get you out of your sleep and give you a headache in return!
You know what I can do more?
I can ensure that you vibrate inside and you are cold or hot when everyone feels normal.
I can also make you anxious and depressed.
You did not ask for me but I have chosen you.
Perhaps by a trauma (c…