Back to work

Dear Bloggers,

I developed fibromyalgia in januari 2007 when I was a 40-year-old receptionist working under extreme pressure and deadlines for a busy ferry company.

I averaged about 6-7 hours of sleep a night due to job stress, coupled with a life-long tendency toward insomnia.

I had also been under a great deal of personal stress for many years.

I would try to catch up my rest by sleeping 7-8 hours a night on the days that I was free, but the family life would not let me.

After a few years of this, I suddenly developed a pain in my lower back and especially shooting pains in my arms, hands and fingers.

My muscles felt tight and inflamed, and I was physically exhausted.

I wanted to work less in the near future and change to another job, but I had to keep on working to pay the bills.
I had no idea what was wrong with me.

I consulted many doctors--neurologists, orthomolecure therapists, fysiotherapists, chiropractors, rheumatologists, doctors of internal medicine, etc. Each one had a different theory: fibrositis, arthroses, sarcodiosis, pinched nerves, lyme disease, and even a hypothyroid condition.

The final diagnosis was fibromyalgia.

I had tenderness at 13 of the 18 trigger points characteristic of fibromyalgia, and stiffness and pain in my muscles.

At times I also had muscle tremors and herendously tired.

I felt totally burned out.

The doctors prescribed drugs, anti-inflammatories, muscle relaxants and painkillers but nothing really helped.

It was very frustrating!

I tried taking vitamins by changing my diet and exercising.

The vitamins helped me feel stronger, but the debilitating pain and stiffness of fibromyalgia still persisted.

Exercise actually made the condition worse sometimes but I was told to keep in motion--it felt like my muscles were tearing.

Even mild stretching, such as reaching too far into a cupboard, would cause me days of misery.

I was puzzled that I even had pain when my body was completely at rest!
Since it was unlike any other pain I had ever experienced, I found it hard to describe to others. Sometimes it was a sharp stabbing sensation, at other times a dull, miserable ache that wore me down.

It felt like the nerves and muscles were irritated and inflamed.

Because I looked healthy and kept up with my responsibilities, a lot of people didn't believe that I was suffering like I was.

Some even said it was "all in my head" or that I was lazy and trying to avoid work!

Needless to say, this increased my emotional stress levels!

Unfortunately, not much was known about fibromyalgia in my surroundings but internet could answer a lot of questions but some parts that you read will make you more sick.
I started losing the feeling of "connection" between my brain and my hands.

I would think I was going to drop something, when actually I would be gripping it very tightly. Also, if any weight was put on my arms, such as carrying grocery bags, lifting a heavy pot from the stove, having a child pull on my arm, etc., I would get terrible pains in my arms that would last for the whole day.

I felt practically disabled!

So many activities I never gave a second thought to now became obstacles throughout the day!

As a "Type-A, take-charge, high-achieving" kind of person, these drastic changes in my life were hard to accept.

It was a nightmarish time financially as well.

I tried physical therapy, cortisone shots, massage therapy and chiropractic to relieve my fibromyalgia.

Of all the remedies I tried, massage helped the most, but it was very expensive and the relief I obtained ended almost as soon as the massage did! My muscles were drawn up and tight, especially in my upper back and neck.

Massage therapists told me that my muscles felt "hard." My whole body was painful and stiff. If I sat for more than 10 or 15 minutes, I could barely get up again because of the pain and stiffness in my knees and legs. I felt like a very old person. I learned to sleep on my back because of chronic pain in both shoulders.

After a couple of months at home on sick leave and many visits to the hospital, It is time to go back to work now.

But question is can I handle it and can they get used to the new me.

The same person dealing in a different way with his energy levels.

The fibromyalgia will flare up or ease off depending on how much sleep I was getting or how much stress I will be under.

I feel pain and tired much of the time and also suffer from insomnia, but I am not the person that sits down and feels depressed.

I actually became more and more aware of what my body is still capable to do.

I had a lot of trouble with insomnia.

Usually one bad night's sleep led to 4 or 5 more nights of even worse sleep!

I tried a lot of remedies, and a chinese method learned me how to relax eventhough I did hardly sleep, the body came to a full rest.

And I had enough energy the next day.
The physical pain of fibromyalgia is bad enough, but the fatigue wore me down mentally as well. For months I was so physically weak that even a normal car trip would completely exhaust me and I would fall asleep on the couch!

Also, the pain sensations were very severe at these times, but I was not willing to give up and let this sickness influence my mind.

Al my back up sources were depleted from years of sleeping problems.

And that was where my body simply started to hit the brakes.
In order to cope, I learned to reduce all forms of stress in my life and to curtail any activities that would make the fibromyalgia worse.

I came to accept the fact that I could no longer participate in many of the activities that I would normally do but that I had to regulate my sources.

I had previously enjoyed, and I eventually adapted to a limited lifestyle.

The carefree days of good health seemed over for good, and I had given up any hope of a "cure" for my fibromyalgia.

I don’t believe there is a cure for it, but if you believe in yourself you can learn how to deal positive with the pain.

The Old Sailor,

End of the summer holiday

Dear Bloggers,

If central Netherlands will also go back to school, the Northern part already started again for at least two weeks.

They are learning reading: With the words Me, moon, rose.

And they learn to multiply and add.

Two weeks is often the case?

A period that children, especially infants get a small decline in fatigue and mood.

The first few weeks and they are getting up happy, when they are clean and brushed waiting at the door when you call them once to go to school, then suddenly there is more and more that they take it slow and they start crying at the farewell.

I often heard the question lately how you can support your child when they go back to school. Obviously, every child and family is different, here are some collected opinions:

Specifically: Tell what you know: the teachers name, This is your class, this is your seat and in the circle. Here we hang your coat on, and look here is the bathroom. If the clock tells..., I come and pick you up.(babysitter, caretaker at school) at the entrance. Avoid big and exciting stories what they do and learn. That comes later.

Specifically 2, after school: Keep your questions short and limited, how was it? It is difficult for a young elementary school child to respond. Easier when you have something concrete to ask like: I see paint on your pants, have you been making something? Or: Fridays you've always have gymnastics and which teacher is going with you? Do you like it (or is it stupid!) what you do with gym? What games do you on the playground? Was that the story of a frog or a horse this morning the teacher was telling? What was that frog doing? The first time it is very difficult for any child to tell what is happening and what he or she experiences. Give them some space, do not expect too much. Suddenly your daughter says:? you know what I find really dumb? and you have beautiful leads to a good conversation.

Caring:(even with an anxious heart) Larger children suddenly doing more cool things as driving around on bikes. That, after the summer they are suddenly being a huge step further. Show me how you do that?,is the question. You say: I walk behind you and if I think you cross the street next time you can do it on your own?.

Caring 2: Keep it cool at home. Playing with others is fine, but set straight away some limits. Two afternoons per week is really enough. Especially for toddlers. And get them to bed on time!
To get them back into the daily rythm will be the hardest part, and also for myself this will be tricky.

The Old Sailor,

A recycled holiday ???

Dear Bloggers,

Yes, it was that time of the year again, time to break out of the daily atmosphere and go on holiday.
Although I have to admit that this time it would be different then former years.
Normally I was the one pulling the wagon and being active all the time.

These days are history and I was not looking forward to go on holiday as I am being tired quite a lot.

But I was pretty surprised that my kids simply did their things and we only had to guide them a little bit. That is also one of the big plusses of having everything inclusive so they can get everything themselves. As the staff is used to Dutch speaking guests the kids can simply manage themselves.

I am very happy man as I really got the chance to relax, my kids hung out with the entertainers and during the day we had all the time of the world in the park, as we had a few days to explore it. So for me there was only the stress of travelling to the park, but the navigation system guided us clearly to our destination.















We checked in and the relaxing could begin, in the restaurant you got your own table for the whole period. And that was absolutely fabulous as my kids knew exactly where to go.

To me it was a great experience, I really came to rest although I had to fight the fatigue attacks in the afternoon, but I could get coffee everywhere and this helped for the time being.

In a way it is one of the most bizarre amusement parks on the planet and it is called Wunderland Kalkar (formerly: "Kernwasser Wunderland") in Kalkar, Germany. http://www.wunderlandkalkar.eu
















It started its life as a breeder-reactor! Shortly before its completion it became one of the most expensive ruins (approx. € 4 billion) when numerous protests, the Chernobyl disaster and political queeries made it difficult to justify its existence.

The Dutch businessman Hennie van der Most had plans for it: He bought the whole ruin (minus the nuclear stuff) for just € 2.5 Million and converted it into a hotel and fun-park.























His early plans of building a rollercoaster-dark-ride through the spooky, labyrinthine hallways of the reactor came to a halt when he was confronted with the totally insane building-requirements in Germany.






















Poor Hennie was close to call it a day, when he famously gave an interview in which he nagged about the German bureaucrazy.

Apparantly placing some flower-pots on a 3 meter (10 ft.) thick concrete-slab required permission from various building-authorities!
Of course their have to be some safety requirements but this was a bit to much of sticking to the rules. At least that is what I think.






















Of course Hennie was also aware that the ambience of his artificial paradise left something to be desired.
Despite being beautifully located at the edge of the Rhine-River, the massive cryptic architecture of the plant overshadowed virtually any idea of family-fun.
So there had to be something done about it.
The cooling tower was turned into a climbing wall and was nicely painted.
Also the other buildings got some fresh and happy colours.

With all-inclusive offerings (all-inclusive means: food and dirnks and especially alcoholic becverages) he somehow managed to fill his bunker-hotel with groups of low-level business travellers and groups of youngsters to have a party.

The good part of this idea is that nobody has to drive home as you stay in the hotel. (No trouble about who needs to drive.) There are some strict rules about noise and that is no problem as the hotel accomodation is seperated in most of the cases from the bar street which is in the basement of the reactor building. And more and more families staying for a few nights.

In the hotel area there are a couple of restaurants in case you want to eat something different then the buffet food, you have to pay a little bit extra for the wok or piri piri restaurant.

We had our virgin experience with the hotel and I must say that we all loved it.
Me as a receptionist myself found of course a few little things that could be done better.
Of course I made a few remarks on the comment card, but these were a couple of minor notes. Our two daughters have already decided to go again next year as this was just not long enough for all of us.

The children's entertainers did a great job and had a good programme running. To please my spouce we have been shopping in Oberhausen mall called CentrO which is only 40 minutes by car from the park. I really have to compliment all the staff as they where all very friendly and helpful.

Eventhough people where queing in front of the receptiondesk, they really took there time for you and explained things how it should be.

The park is now in its 14th year of operation, catering to families who can´t or will not afford a day at one of the upscale German and Dutch amusement-parks in the area. (where you have to que at least for a minimum of 20 minutes on every ride.) We tried one of them on our last day.

















Moviepark Germany is approx 1 hour drive from Kalkar. I had booked the tickets online with a discount offer of 30% but still I had to pay more then € 80,-
The park was in my opinion absolutely overcrowded and only the atractions for the little ones were available within 10 minutes as they were running as short as possible.
For the main attractions like the rollercoasters at ten o'clock in the morning the queing time was already 50 minutes or more.
Furthermore several attractions where not open or under repair, strange thing to do that in the high season.

Looking at new pictures of Wunderland, it seems that they somehow manage to blend out the buildings by simply throwing lots of paint on them.
Besides, after a place has been used for a different purpose long enough, the "old ghosts" seem to vanish.
Still, the idea of putting an amusement-park into an atomic powerplant is awesome, even if the outcome is a bit underwhelming.

At this moment Henny van der Most bought himself a “new” powerplant in Meppen (just across the Dutch border between Groningen and Assen.) http://www.funpark-meppen.de




























This so called funpark Meppen will be opening this year partly but will be more based on extreme action sports.
The concept will be similair to Wunderland (All inclusive) but this one is for the bigger kids and their moms and dads of course.


The Old Sailor,

Open Letter about Fibromyalgia

Dear Bloggers,

As I became active on a Dutch forum about FM, I found this letter and had the feeling that I should share this with you. Just to get you a better picture of what I feel. Do not worry I have translated the letter from Dutch to English so do not hang me up on small spellingmistakes.

And as we all know that life is brutal, but still there is no reason to let your head hang down.

This how I look at real friends: a friend is someone who dances with you in the sunlight and walks beside you in the shadow as that is all what live is about.

Open letter to people who do not have Fibromyalgia:

If you have Fibromyalgia, it means many things change and that many of these things are invisible.

It is not visible as a paraplegic.

Most people do not understand even a small bit of what it is to have FM and living with the effects it has on your life.

People who think that they understand what you have are normally poorly informed.

To be informed, and who can understand? .......

There are certain things from me I want you to understand before you condemn me ...

Please understand that being sick does not mean that I am no man or woman anymore.

Most of the day I spend in a lot of pain and exhaustion, and if you visit often, I am not very pleasant company, but I am still in this body.

I am still winding myself up about work and my family and friends, and usually I love that you also talk about the things that are concerning you.

Please understand the difference between "happy" and "healthy".

If you have flu you probably feel miserable, but I have been sick for many years.

I can not always feel miserable, in fact I work hard, not to be miserable.

So when you talk to me and I sound happy, it means that I'm happy.

That is all.

It does not mean that I have no pain or being terribly tired, or that I am getting better, or whatever.

Please do not say: "Oh, you already sound better!".

I do not sound better, I sound cheerful.

If you want to say something about it, you can.

Understand well that being able to stand for 10 minutes does not mean that I can also stand for 20 minutes, or an hour.

And since I could stand 30 minutes yesterday does not mean that I can do the same today.

With many diseases you are either paralyzed, or you can move.

This disease is more complicated.

Everything described above also applies to "sit", "walk", "believe", "thinking of others" and so on ...

It applies to everything.

That is what Fibromyalgia does.

Please understand that Fibromyalgia is variable.

It is possible (for me that is normal) that one day I can walk large pieces and back while I have trouble the other day just to reach the kitchen.

Do not attack me with: "But yesterday you did!" if you want me to do something, ask if I can.

In a similar situation, maybe at the last moment I will cancel an appointment, if that happens do not to take it personally.

Please understand me that “going out and doing things” not make me feel better and I often feel a lot worse.

If you tell me that I should move a lot or that I should lose weight (or even gain), or I should buy a training device, even to go to gym or something like that ... then I will do that.

I am emotionally hurt (and I need to cry sometimes) and that is not good ... all these things I would do if I could, I would like to do and you know it?

I work for myself with my doctor and physiotherapist, and I do all the exercises I should do in my situation.

Another decision that I really acts is: "You have only yourself but harder to tackle ..."

It is clear that I work for myself with my doctor and physiotherapist, and I do all the exercises I should do in my situation.

Another judgement that I really hate is: "You have to be a bit harder on yourself..."

It is clear that Fibromyalgia has to deal directly with the muscles and because my muscles are not developping the same way as yours , I distroy more than I do good when I follow your advice and it will cost me days or weeks to return where I was and to recover from even a single activity.

Please understand that if I say I need to have a seat.

Too lie down or need pillows, and that I need it now - it can not be postponed because there is no time for it, or that I am not at home. (or for any other reason).

Fibromyalgia does not care about that.

If you have a good idea for me, than keep it for yourself.

It is not something that I do not appreciate, and it is not because I do not want to be better.

It is all because everyone has a good idea for me.

In the beginning I did everything that I was advised and gave it a try, but I realized I was consuming so much energy to try things that I made myself only more ill, and not better.

If there would be anything that all Fibromyalgia patients could help or could cure them, then all persons with Fibromyalgia would have known.

There is a global network (Internet and others) between people with Fibromyalgia, if there would be something that might cure us, we would know.

If you have read everything and you want to give me a good suggestion, please do so, but do not expect me that I immediately go after it and give it a try straight away.

I will then consider it and discuss with my doctor. In many different ways I depend you - people who are not sick - I need you to visit me when I'm sick or when I can not go out myself... Sometimes I need your help when I need to do some shopping, cooking or housekeeping.

I'll probably might even need your help to drive me to the doctor or physiotherapist I need you also in a different way ..... you are my link to the outside world ... if you will not visit me then I'll maybe not see you that often. ... and, as much as possible, I need it that you will try to understand me.

The Old Sailor,

Perpetuum Jazzile - Africa (live, HQ)

A good friend of mine cheers me up on rainy days and he was sending me this video. Amazing how they do it, a good example that the credit crunch is there. They probably did not have any money for instruments. I would say sit back and relax, close your eyes and enjoy this masterpiece.

The Old Sailor,

Kylie Minogue - I Should Be So Lucky

I should be so lucky part 1

I should be so lucky part 2

Dear Bloggers,

OPINION: The road to hell may well be paved with good intentions, but nobody told me that you would have to listen to a chorus of whingers along the way.

I was listening to the Radio the other day and they were discussing how we were sliding of slowly towards some sort of hell and there was no way we would ever look back on these present times as the "good ol' days" like they had back in the fifties and sixties.

What a load of ….....
We all know about the 'glass half full or glass half empty' metaphor and I hesitate to suggest that the current level is starting to be unreflective of the unimaginable bounties that we currently possess.

In other words, our glasses are almost full and too many of us are nagging about the bit that we are missing at the top.
I started writing my blog today as I wanted to expound on some of the more positive things that are going on.

Well, today I wanted to write about how incredibly fantastic it is to be alive in this modern age. 'What are you on?' I hear you say.

No, nobody laced my breakfast with ecstasy this morning.

I sometimes think the opposite is going on.

Maybe the whole population is being drugged to suppress their excitement and enthusiasm at their good fortune to be living in these wild times.
I was tripping around my house this morning belting out the chorus of Kylie Minogue's 'I should be so lucky' and my five-year-old was telling me to stop singing. It looks like they have got her too. Kylie is good example aswell if it comes to being positive, she is really a strong woman as she was struck by the horrible disease called cancer. Never let your head hang down, but fight.

It is all very well for me to keep on telling about how great it is to be here, but I must qualify my assertions.

I have always believed if you want to understand your place in the universe you must look at the wide view.
Fundamentally, each of us is just one of nearly seven billion bipedal apes shuffling around on a big spherical rock trying to procure a few basic needs- namely food, shelter, and, if you're lucky, a bit of reproduction.

It looks as though we have achieved these basic requirements rather well and by all accounts most of us are in bloom.
Judging by the number of overly corpulent persons crawling down the streets of the western world, many of us are not flowering at all.

It is a rather telling paradox of our times that our problem is not that we don't have enough to eat; it is that we can't stop shovelling tasty morsels into our gaping mouths.

At no time in the history of civilisation has there been societies where the general population has been so affluent that they have been able to consume all the meat, sugar and carbohydrates to their labouring hearts' content.

Yet we still complain.

Our car is not new enough, taxes are too complex, society is too crime ridden.

Reality check: You have a car. Your taxes bring are wide range of services that have become essential to your life. You probably haven't been a victim of a serious crime recently, and if you have been, just remember you are still here to fight another day. (there are two things we are sure of in this life: death and taxes.)

Let's go back a couple of thousand years and you can be sure that things wouldn't nearly have been so rosy.

Some of your brothers or sisters would have surely died in childhood.

Disease would have been a constant threat.

Running water and functioning sewerage would have been but a distant dream.

And murder a not uncommon practice.

Do you think they sat around the fireplace bitching about issues like whether or not we should put folic acid in our bread?
We are much more unlikely to die a violent death these days than at any time in history. Something in modernity and its cultural institutions has made us nobler.

In fact, our ancestors were far more violent than we are today.

Indeed, violence has been in decline over long stretches of history, and today we are probably living in the most peaceful moment of our species' time on earth.

I like the idea of Thanksgiving eventhough there will be thousands of turkey's killed for it.

I don't know exactly who or what we are supposed to thank, maybe God, maybe some exotic religion, maybe your mother, but I think it would be good to spend a day every year reflecting on the fact that our glasses are almost full to overflowing and the little things that send us into apoplectic fits of self-pity and disgust are really just a small beer.

You don't need to wait until this special day of reflection though.

You can do it right now.

Look around you, examine the detail, think of where you have come from and where you are going and if you really get it, if you really, truly understand the situation in which you currently exist, it should blow your freakin' mind.

If you can't climb out of your own reality so easily, but there's a place somewhere in your surrounding that might do the trick.

Surrounded by some pieces of our beautiful nature and if you don't have any kind of happy feelings as you consider your place in the universe you really have been drugged into submission by some dark forces determined to keep you from being happy.

I'm the first to admit that I'm not always the paragon of cheeriness and positivity, but the concept that we are all extremely fortunate to be here is never far from my thoughts.

It is great to be here and I hope you can see that too.

You all enjoy the rest of the summer while I take off to the next door neighbors beautiful country and relax for a few days.

The Old Sailor,

How to live positive with Fibromyalgia

Dear Bloggers,

Or how to look on the bright side when you are in pain everyday...

While we can never remove them completely, We CAN break the chains of Fibromyalgia!
Dealing with constant daily pain is... well, to state the obvious... a real Pain!
When you are in pain, the whole world becomes dark and dreary, this is a dismal place to live.
You hurt to even put your clothes on in the morning...It is hard to enjoy life when even a loving hug is painful!
Fibromyalgia is a painful condition.

Everyone experiences pain, so those of us who are stuck with it, or another chronic pain condition, all to often, get very little support from our family's, who may feel that we are being over sensitive or simply love creating drama.

I explain Fibromyalgia like this.

Take 5 clothes pins (you know the old fashioned wooden kind with the metal spring)...Place one clothes pin on each finger...for a little while it is tolerable...But keep them on longer and they become painful...Keep them on your fingers longer still and they become unbearable and the wearer wants to take them off...Then Tell them that they can not!
After a couple more hours of them having to continue wearing those clothes pins, then explain that this is the kind of pain you experience on a daily basis... day in day out, 24/7.The difference is that, they CAN take the clothes pins off and we can NOT!

I saw this somewhere on one of the Fibromyalgia web sites but honestly can not remember which site has it. To them I apologise.

Most people don't understand that even though we may not look sick, we really are.

Life becomes an endless blur of pain.It hurts to sit, it hurts to stand, we may walk with an unsteady gait, we bump into door frames, stumble and fall frequently...
So here are some tips I found useful to help me to cope with the daily pain and disability I deal with every day from Fibromyalgia.
It affects more than just the sufferer...It affects the entire family!
This is probably the hardest thing to do...Accept that you did not cause this, AND it is not just in your head!
Sit down with your family and discuss your Fibromyalgia or your other Chronic Pain condition with them.

Don't leave anything out...Be honest and frank in your discussion.
Try not to take it to heart if they do not understand or seem unsympathetic, some familymembers are just like that.
For me the Fibromyalgia hit like a train running over me at full speed...I have trouble getting up after it hit, my body feels like being beaten up, all I wanted to do was sleep for a while....If this sounds like you, these are the things you need to make your family aware of.Hopefully they will understand.If they do not understand, it will make things more difficult on you, but not impossible.

Understand you can't do it all....Be honest with yourself!
Take on projects in small bites, take your time so that you do not exhaust yourself and cause increased pain.
Fibromyalgia is a day to day kind of disease...today you may feel alive and full of energy and tomorrow you may barely be able to get out of bed!
Try to surround yourself with positive peoplePositive people will increase your energy, because they are supportive and will be more understanding.
Negative people bring you down, are not supportive and can actually cause you injury or increase your symptoms simply from the added stress or you pushing yourself to meet their expectations!

Joining a gym, fitness can keep you mobile...Join a gym? Yeah, I know it sounds crazy but, with Fibromyalgia or other chronic conditions you will feel like want to avoid exercise but, exercise is necessary to prevent or slow down the loss of function that occurs with these conditions.You hurt, so you do less, and you hurt some more...you exercise, you hurt, but you do not loose as much muscle tone...There is a fine balance though, that you need to be aware of, many doctors do not realize this or forget to tell their patients....
While at the gym you need to realize that most of the machines in there are geared for "normal people"whatever normal means...That said, some machines we will be physically impossible for us to use without causing injury to ourselves.

Take care of yourself... do not attempt to work out on machines that are difficult or cause you pain!
Listen to your body, place your mind in a peaceful state.

I mean, really listen to your body, you know you will be in severe pain by evening with your normal stuff anyway, so do stretching exercises.

Heat works by increasing circulation to the area which in turn helps to flush toxins out of the muscles. I love to take hot showers in the morning too get started.

This increased circulation will also increase inflammation so keep this in mind.

Heat is also known to soothe aching muscles.

Get a hobby like gardening, collecting coins, puzzles, anything you really enjoy a hobby can keep you mentally stimulated and help you at least temporarily forget about the pain.

A hobby will keep you busy, you can work on it when you feel up to it.It can give you a sense of accomplishment and putzing around with it keeps you active and mentally alert.

For me bicycling is soul healing... just riding out there looking at the wildlife and landscape is peaceful.

Take time out for yourself.

Do what you enjoy but remember your limitations, you can push them but, as you well know you will pay for it tomorrow.
Some things are worth the pain and fatigue!
Everyone needs to take a little time to pursue what makes them feel calm and at peace.

Life is wonderful, you can still get out and enjoy the world around you with chronic pain, just take things slow and easy

Do something to give yourself a reason to get out of bed every morning
Accept that you do have limitations, and ask for help if needed. (although this is pretty hard in the beginning)

Depression is common when dealing with Fibromyalgia and other chronic pain conditions.

The depression is a result of the pain not the cause of it.

You are not mentally ill as some doctors still believe... If they tell you it is in your head or you need a psychiatrist... get a second opinion and FIND A DIFFERENT DOCTOR!
Be proactive in treating your condition.

You know your body, tell your doctor how you feel, where you are currently experiencing weakness or pain so that the two of you can make educated choices on how to treat your particular symptoms.
Despite the pain, you MUST exercise to keep what function you have.

The Old Sailor,

Holiday Fun?

Dear Bloggers,

Our country is hardly moving, or at least not so fast anymore.

We live these days in a whirl.

On the edge of pulling through the last bits or they are at least dreaming away about what will happen.

However, many also are concerned about what will happen.

Will I be fired after the holiday or am I another victim of the Mexican flu?

According to experts, the recession and the flu will show themselves from their worst side soon. It can be seen in their faces.

Some are looking pale, despite the fact it is already high summer for weeks.

Others are brown tainted and sitting relaxed behind their desks.

Just work for a while, and then we really are going on a holiday.

However, the open-mindedness is something that is far gone this year because now the exciting places may be hazardous this time.

And then the idea that the holidays might be the last ones Mom or Dad gets unemployed.

This in relation with the stranglemorgage they can not cough up moneywise.

In the street you start to find empty places.

You got already quickly used to caravans and motorhomes that decorate the street.

With a certain probability I think that a few of them need to sell their so called “hobbyhome”.

I am also happy that I am not that hooked on going on holidays.

I find it just as much fun on the Costa Backyard as the Costa del Sol.

As myself many parents of young children pressing their last energy out to begin the holiday with as much fun as possible.

I therefore put the pool up and place it in the backyard, the children still had not much interest although the temperature was rising to thirty degrees celcius.

Unfortunately, the kids don't want to do anything fun because they are just tired.

The last bits and pieces were the hardest ones.

Here at home the atmosphere is excited as they understand that we no longer have to get up early.

But if you're awake then you will find Dad downstairs.

I am almost every morning up around six o'clock already, because my body is being painful crying for a hot shower and medication to mute the pain.

After a few days they are used to the new rythm and get out of bed as I have already a half a day behind me.

It is pretty tiring for our kids, waking up every morning at seven o'clock because they have to get ready for school.

But if it is holidaytime, it is tricky in the beginning to sleep in, and it happens the first few days that we shared our breakfast at seven, despite the fact that we all are having summerbreak, but many times after breakfast my oldest daughter goes back to bed.

And I cannot say that this is wrong.

It is only the beginning of July their holidays have just begun.

We only go on a trip at the end of their summer holidays.

It all boils down to a week or five with nothing to do.

(According to my two lovely daughters we find this boring.)

If we sit at the breakfast table, and I prepare for this holiday time, I am bringing up my topic: “Adventure” is the magic word.

Where do you want to go this holiday?

There is a long silence at the breakfast table.

However, my oldest comes up with a few ideas and I write them on paper.

We make a list of adventures park it to the cooker hood.

My youngest doesn't care at all no matter where we go as long as we go by bus.

(she is five and that is her greatest passion.)

Indignation, is widespread when my wife announced that we have no money for these kind of things.

The recession became also active in our savings account.

We will probably not be able to do all adventures but at least a part of them.

We just want to have occasionally the holiday feeling, after the hard work at school where the days were long.

We are happy with a museum and an amusement park this would be enough for us.

It is true, they had to work hard this year because our school was not that good.

The inspection has been very satisfied with the results.

I fear that after the holidays, when school starts again, it will cost the same amount of weeks to return to the harness of getting up on time and yes soon enough it is again November 11 and we are also getting closer to the arrival of Sinterklaas.

Then new strenuous times are there.

There is something unfair in it, they have so much to learn, and I occasionally learn a bit about all the new techniques.

But they are still at the beginning of life and will have at least 45 to 50 years of working for a future to build, I am now somewhere halfway.

I am going to think quietly about it and take a walk through the neighborhood.

It is a confusing time.

Neighbors in shorts are busy packing the camper.

Mothers with children riding hasty and crates full of groceries into the street. (own potatoes rule)

At home my children enjoy their holiday in the garden leave and I walk on quietly thinking.over everything.

Slowly I realize that during my childhood we did not go on holiday because there was simply no money for it.

However, I do not blame my parents because they made great trips with us to the IJselmeer.(the big lake in the middle of the Netherlands.)

We had bread and coffee to go and we bought an ice cream.

This was according to my experience the ultimate holiday.

The Old Sailor,

They call me fibromyalgia

Dear Bloggers,

Let me introduce you to my new companion in life.
I found this on the Dutch fibromyalgia site and translate it, as it comes quite close to my feelings.

Now they gave it a name and now the fight against it finally begins.

Hello,

I am an invisible disease.

I am now with you for the rest of your life.

Others around you to see me, but your body feels me.

I can attack you when and how I want.

Also I can take care of you by giving severe pain attacks.

And if I'm in a good mood I can even ensure that you have pain.

Remember that you did a lot with your energy and had a lot of fun?

Well, I took that energy away from you and gave you fatigue instead.

You now also trying to have fun, but I get you out of your sleep and give you a headache in return!

You know what I can do more?

I can ensure that you vibrate inside and you are cold or hot when everyone feels normal.

I can also make you anxious and depressed.

You did not ask for me but I have chosen you.

Why?

Perhaps by a trauma (car- crash/whiplash, surgery....?) That you had.

Or by a virus that you caught somewhere.

Anyway, I am here now and I will stay!

I hear you went to a doctor, to get rid of me.

Hahaha, I rolling over the floor and laugh!

Keep on trying!

You will be going to many doctors if you finally can get rid of me.

Also you will probably be packed with pills: sleeping pills, vitamins, painkillers, energy pills?

You will get massages and sometimes they will tell you that you are anxious and depressed. They will tell you that if you take pills on time, and do your exercises well, I will go away.

But the worst is that sometimes you will not be taken serious, when you are yelling at the doctor that you do'nt have a normal life anymore.

Your family, friends and colleagues will all listen to you until they are sick and tired of knowing how I let you suffer and that I am a disease from hell.

Some will say: "You just have a bad day" or "Yes, you can not do anything more that you could ten years ago."

They are not you then say: "Ten years ago? Ten days ago!"

Also, some will talk behind your back while you slowly get the feeling that you are losing your self-respect.
Still you try, while you know, to explain them so they would understand.

This can be especially difficult if you have one “normal” person where you are talking to, because sometimes you'll suddenly forget what you wanted to say.... The only people who really understand you and support you are, the people in whose body I am also present.

And unfortunately, you will also discover that your true friends you can count on 1 hand.

But the ones who are there are those, which are there for you REALLY!

The Old Sailor,