Showing posts with label brain injury. Show all posts
Showing posts with label brain injury. Show all posts

January 30, 2016

PTSD is often a life sentence

Dear Bloggers,

PTSD is often a life sentence
Where are the therapies, the support, the compassion for those dealing with trauma?

Victims suffering from post traumatic stress injuries are not only members of the police or armed forces. Victims can be anyone; man, woman or child. Most of them struggle every day with their trauma. Many women who have suffered rape and other forms of abuse, suffer further from treatment from the courts. Interestingly, they are said to have post traumatic stress disorder (PTSD) while soldiers are said to have post traumatic stress injuries. 


Post traumatic stress disorder is a wrong name. It is an injury. Disorder suggests the victim is somehow responsible for not functioning normally. PTSD victims are frightened and powerless but not responsible for their injuries. Many (sexual) assault victims suffer from PTSD and seemingly insignificant incidents can trigger panic attacks and create difficulty in functioning. When someone with PTSD commits suicide it is because they can no longer cope with their injuries. Unable to receive satisfactory treatment they take the only way they see out of their suffering.


We like to make others believe that we treat everyone the same. We don't. In my own surroundings I did a bit of survey about 49 per cent said they would socialize with a person who they would call in their normal life a friend with a mental health issue. Only question is did all the respondents gave honest answers? About 51 per cent of people around us would avoid “friends” with PTSD.


Trying to have a normal loving relationship with any man is nearly impossible. Innocent of any wrong, they suffer for the rest of their lives. And even you have been together for many years they simply cannot trust you fully anymore.
People cannot gauge the victim's suffering. Even some doctors have difficulty dealing with patients with PTSD and only offer prescription drugs as a cure. Instead of being supportive, we compound their injuries.


Talking about the trauma may be an attempt by victims to heal, to be accepted back into society. They turn to friends and family for help, but all too often the emotional impact of the trauma isn't understood and victims retreat into their shell for self protection.

A simple incident, a voice, a word, a car, anything, can bring on flashbacks and trigger the victim into a panic. Days and nights are filled with nightmares, lack of sleep, sweats, and rage. The stigma attached to victims often prevents many from seeking help until it is too late and there is little or no chance of recovery.


Most serious is the risk of suicide. When every waking moment is spent feeling rejected and alone, in fear and exaggerated alertness, ready to run in an instant, thoughts turn to suicide as the only way to find peace. This is most of the times in the first phase of the traumatized person.
Unable to work, some eventually receive some social assistance, but it's seldom enough for them to live comfortably. Reduced to below-poverty existence and forgotten, these once-productive citizens become a troubled group in society.

Recently, EMDR (Eye Movement Desensitization and Reprocessing) a relatively new treatment has shown some promise. But where does a victim get this help? Only a few specialized psychologists and a couple of psychiatrists are registered with EMDR


Many victims, are losing their job and after two years of sick pay they will get unemployed and they are struggling to live on disability allowance. Instead of having a social life, they continue suffering, unable to contribute in any positive way to their own care, they depend on the care of their children or their families.


Where is the equal treatment for PTSD victims? Lucky us our insurance gives us kind of free health care? We cry out against human rights abuses in other countries but deprive our victims of their right to proper health care, to a life without fear, to security of their person? It's time we helped these innocent victims instead of adding to their abuse.
Traumatic life-threatening events often leave emotional scars, which, like physical scars, remain with an individual for the rest of their lives


I’m so tired of having PTSD…in fact I am so tired of forgetting for a moment that I have it only to have it come back and smack me in the face. That is what my wife tells me after a period of making a step back. I hate acknowledging it’s presence because then I have to accept that it is never going away and that's though as a spouse.

No matter how hard she tries, no matter how much work she does, PTSD will always be there. On some level I know it is about managing symptoms but tonight is a not to good one and I just wish it would go away.


She complained the other day to her therapist: I am so afraid of silly things and I am jumping at the slightest touch from my partner. I am not sleeping during the night and I am walking around the house. Either way if I sleep or walkabout, I wake up exhausted. I’m eating everything in sight that contains sugar and I am quickly rebuilding that wall that exists between me and the rest of the world. I want to return to old ways of coping…anything to feel comfortable in my skin. My partner is very patient but I am tired of him needing to be. I am tired of working so hard to do the right thing to only end up needing his help and support.


Luckily the racing thoughts are not back as full force as they once were and I am still able to outrun them by a bit. I am tired of living each day wondering is today the day I wont be able to manage the symptoms. Is today the day I have the meltdown that let’s the whole world know about my struggles with PTSD?

She does sometimes get to a point where life is good and she feels strong and in control of her symptoms. Today is not one of those days. I do understand that the PTSD is the result of managers abuse that I endured for 3 years. I also understand that the psychological abuse was not my fault. And in this case I could not see what was happening and even though I advised her to knock on some persons doors, none of them stopped the abuse as nobody did stop the psychological abuse he was such a “good guy” he had a free hand. What I don’t understand is why it came with a life sentence.


I think PTSD is different for everyone who experiences it. All the emotions that accompanied the original trauma were as fresh as the day you experience them. The worst part of PTSD for my wife are the nightmares, the hyper-vigilance, the adrenalin rush and the stress of always being focused on my surroundings. PTSD is, more than anything, an in-your-face realization of your own mortal nature and of the fragility of life itself. Headaches, fatigue, discomfort in places where there are large numbers of people (7-10 and up), fully hit by panic attacks, anxiety disorders, emotional numbing and inability to have close relationships can be a problem as well.

Typical phrase from my wife: "Therapy, re framing, EMDR, and a variety of techniques have worked well for me, but I admit, there are many days it is just a relief not to have to leave the house."


The Old Sailor,

October 12, 2013

Ten years after the fall

Dear Bloggers,

In 2003 we just moved into this house, I slipped and fell down the stairs. The doctor was called and as it looked bad as they thought i had broken my neck or spine, the ambulance service was called. The light was out in my head and things past around me in a far distance. The paramedics were rushing in, to treat a man who’d had made a crash landing from the stairs, when they spotted me lying in the middle of the hall next to the staircase.
I was conscious, alive and talking with a double tongue- but my blood pressure and pulse were normal, Only my head and left hand hurt. I can't remember much of that night. The next morning when i was woken up by the nurse. The doctor said that i should consider myself lucky.




It was 11am and I said i wanted to go home: but the medics persuaded her to stay at the hospital.'If you get a second chance in life, you ask yourself what you are going to do with it,' 

My head soon hurt so much that I was sent for a CT scan.
The scan showed I was suffering a contusion but there were no hematomas on the scan but there was a lot of activity across the brain.I’ll never know what happened. Last thing i remember that i was on top of the stairs. 



I was transferred to the head trauma centre at the local hospital in Heerenveen, and by the time my wife arrived from our home 15 minutes later, They gave her a status update that there might be a chance on brain damage and only time could tell.
Thankfully the paramedics did everything to save me, but my life nonetheless changed for ever that night.Before her accident, this fit and fiercely independent young man, who became friends with everyone became a lot more distant even to the ones the closest to me. Emotional there was no such thing as that one guy that I vaguely recognized from the past. The body was me but I was trapped in my own brain. And somehow I am still searching for the old me. 
 
  
I was now facing an arduous recovery. The injury left me with a blurred vision in the left eye, extreme exhaustion and what I would describe as a ‘constant heaviness’ in the head.
Now, ten years on, I need 8 hours sleep a night any less and I suffer from‘cracking headaches’ that can last for several days. And I am yawning all the way when i am behind the wheel. I also have occasional memory lapses. I am still hopeful things will keep improving, but there are no guarantees.'I could have kept a diary so I can remind myself I am getting better,' but no I didn't and it is hard to remember after all those years.
Every year, 21,000 people are admitted to hospital in the Netherlands with a brain injury. 




It’s likely that I've hit the wall with my head when I fell down the stairs or was knocked out by the hard floor. But the causes of brain injuries can range from falling down the stairs, to a stroke or heart attack that interrupts the brain’s oxygen supply.
I made a really good recovery they say, but often patients don’t do so well.
'It depends on the kind of injury, as well as the support they get,’ said my Neurologist.
When the brain is injured, it swells like any other body part, he explained.
But the skull is fixed — there’s nowhere for the brain to go, so it gets squashed. That’s why rapid diagnosis is needed.



The regions of the brain that control the basic functions that support life can get squashed out of the tiny hole at the bottom of the skull where the brain meets the spinal cord. That’s often what kills patients.’ More and more people are surviving brain injury and stroke, but the long-term consequences can be devastating. In my case my character changed.
The area of the brain that controls emotions may be damaged, as a result of which a patient’s personality can change. Rates of depression and anxiety are high, often leading to relationship breakdown. And that is something that still scares me.

Cognitive and memory problems are common, too, which can make your job impossible.
The brain moves when it is injured, which may cause the axons — fibres that send signals between brain cells — to tear, so signals travel more slowly.Tiredness is also a problem, as the brain must work harder in everyday tasks. The area controlling sleep can be damaged, too.



After leaving hospital, I spent at least four months at home, sleeping for much of the day and taking short walks. In the beginning I was falling over and I lied to my wife that nothing happened.
Gradually, the energy began to return. And before long, I hit upon a desire to take a long walk.Secretly, I made plans to get back to the point were i was before the accident. So with a lot of help from good friends. I learned most things back although calculating from the head is still not back, furthermore my character has still not changed back. I am more grumpy and I am missing the soft side of me. It is somewhere out there but I have not found it yet. I am afraid that somethings are not changing back.



If you get a second chance in life, you ask yourself what you are going to do with it,’
I wanted to get away from everything to think.’ In July, five months after the accident, I set off and got back to my working place again. Language was the main problem as English is the language used among an international crew. My wife had to do the talking as I could not find the words. Very irritating when you know what to say but simply cannot speak the language anymore. I was totally frustrated and went off like a mad man on my wife. Who had done the best way of English she could but there was no appreciation from my side only anger.



The doctors thought it would provide a goal, and a good rehabilitation process.
I think I was still slightly not with it. Lots of people have said to my wife, “I can’t believe that you don't let him go” but she said he is 35 and I still love him. I guess that she is longing for the guy she dell in love with. I was so focused on my own recovery that I forgot to work on my soft side. They couldn’t really stop me even if they’d tried. I’ve gone deep but believe me, I never been a quitter.’


It was a journey that would have tested even the most hardened. It has been hell week for more than a year in a row. Most people I met were doing just a section of the epic stretch. They were astounded that this young man was attempting to do the whole thing alone.
I practised from dawn till dusk on languages for six months, with only a few stops. I had to get back in the saddle and feed my family again.

I endured moments of ‘desperate’ loneliness and such a sore head that ‘if someone had offered to cut it off, I’d have said yes’. 
 


Some things, though, have changed for the better.
I don't think I’ve become a nicer person. Everyone in my family says they preferred the old me. 'It’s as if I’ve had an edge knocked off, I don’t have the energy to bulldoze through life anymore. I’m less patient, and more openly emotional. I’ve got a calmness that I’ve never had before.’ Before I would fight with everyone and take up the discussion.
I prefer not to dwell on what happened that night it sometimes makes me curious, but I’m not sure I want to open that door again.



The doctors warned me that my brain injury can lead to depression, but I think it’s had the reverse effect on me. From the moment I woke up that morning in hospital, I felt like I was drunk and really happy. I’ve experienced depression, and it’s only when you nearly lose your life that you feel guilty that you ever had those dark thoughts that you wanted to end it.

You think: “Woah, hang on a minute! I actually want to stay alive.”



The Old Sailor,

September 19, 2011

How crazy can I be?

Dear Bloggers,

Last Friday I had a gentleman on the bus who had a difficulty with his speech, no problem in this case as I had a waiting time of more than twenty minutes. We talked about what had happened to him and how difficult this was feeling. He suffered from a brain trauma and lost a lot of his normal abilities and some people called him a nut as he rides on a special bike. He could not recall to his life that he had lived before and his memory gives only some flashbacks that he could put into place, he carries a picturebook with him to recognize his own kids and wife. And that must be terrible (unless you’re having a horrible wife and kids) After his story I drove back home and tears were running down my cheeks overthinking his emotional plea.


Once again I realized how lucky I have been when I tumbled down the stairs a few years ago and got my brain got fully shattered. We just bought this house and we had just moved in. That evening we just brought our daughter to bed and my wife was just pregnant from the second one. When I was on my way down I slipped on the top of the staircase. When I was picked up again by the ambulance personel and rushed of to the hospital I slowly came around again.I felt a sharp pain in my head. Before I knew what was happening I heard a loud high tone in my head and I had trouble with my balance and my hearing. I remember the moment that I was falling, but don’t recall hitting the ground or the wall whatever came first.


I lay unconscious on the floor until my wife called me. I woke to find people hovering around me, pinching me to get any reaction. They were asking me questions, and although I could hear them I was unable to respond normally. As talked with a double tongue. I was told that an ambulance was on the way, but I thought it was completely unnecessary and that I would be fine in a few minutes.The ambulance arrived and took me to hospital and all the initial tests were clear. My partner arrived and I said to her that I didn’t understand what all the fuss was about. Luckily a doctor ordered a brain scan, which is normal when they found trouble in my brain. The neck collar was bathering me the most as the expected that I had broken my neck.

From that moment on I felt like I was floating near the ceiling, looking down at myself, watching everyone rush around me. I was taken to another part of the hospital, where I had a neurologist waiting for me. Everything changed then and there.



My doctor informed my family that I had suffered from a cerebral contusion. Two days later I went downhill quickly. A neurologist advised my family and partner that the brain had been shattered that much and that my character might have changed and that I could be angry and frustrated. As I might suffer having trouble with finding words, mixed up thoughts and not being able expressing myself, memory loss could also give extra frustration.

I underwent multiple tests to monitor my progress, and I lived with a tremendous amount of pain. I pleaded with my partner to take the pain away, and told her that I would have rather died. She just kept telling me that each day would get better, and that I just had to keep fighting.



After the worst was over, my slow recovery began. I was in care for three days, and as my rehabilitation seemed to go well, I was send home to recover slowly to the normal me again as it was not that bad as they thought. But I did not feel at home at all as there was a strange driver at the wheel, so to say the captain of this ship went overboard and missing. I cried almost every day; the feeling of helplessness was awful. For the first three weeks I couldn’t stand for a long time and when I walked I was out of balance and I fell over my right side for a few times I lost some of my muscle definition. For the first few weeks after that it felt like my body had forgotten how to walk and I was dizzy all the time and very heavy headed.


But as the weeks passed, I realised I could only keep getting better. I still have down days, I still cry over nothing and I’ll forever be asking “Why?”, but then I remember that eight years ago I was almost dead, and today I’m almost back to normal. I still get tired easily and don’t sleep well, which are common symptoms of a brain trauma injury. I also get headaches every now and then. Unfortunately the brain injury has left me permanently missing parts of my character and calculating skills and my walking and balance still deteriorates when I get very tired.

I am one of the lucky ones. I survived. Three months later I was driving again. My brain is still recovering; I’ve been advised it could take many years to completely recover. But now I’ve quit smoking and I stress less. Life is too short and unpredictable.

I still find it strange that I am not suffering from more problems as the man that I talked to never got back to a normal speech again and he has to ride a tricycle as his balance is fully disrupted. I wish I could see inside his real thoughts if he felt lucky or would he have been rather dead? This question is until today still humming in my head :”Why me and for what purpose?”





The other day I saw a bumper sticker that said
“After head injury, life may never be the same.”
How can nine words have so much impact on one’s life. I find it
painful to look back at when life was “normal”. I feel scared when I imagine the future. So, I live one day at a time and sometimes even a minute at a time.

It started in April of 2003 when I had this cerebral contusion. The doctor said the recovery went well. What the doctor didn’t tell me was that I would probably end up with impaired judgment, emotional problems, and would not be the same person that I was before the crash.

The whole family rallied for my recovery. After months of physical therapy, speech therapy, occupational therapy, and eventually work adjustment training, problems were still so intense it was overwhelming. I was improving physically, but my emotions were gone, my love for the two of us was gone and I did not understand what was happening.



I first of all retired on disability and our income dropped € 30.000,- per year and we got more and more trouble to pay the bills. I had to find a better way of making a living again. So I ended up going to work full-time on a ship again.

Besides the tremendous burden of dealing with a person that felt himself a husband and father before. But now I was physically and emotionally impaired, the family did not have enough income to live on. So, I ended up getting more and more physical problems at night.



I left the old me behind and tied to get in line with this new me. And it is tough to deal with a father and husband who is full of anger, has emotional outbursts, did not care about what ever happened to him. Thinking back, I know I did not do the right thing, and I worry about the impact that this had on my oldest child.
But at the time, I was just trying to survive – buy food and make the house payment.
Life suddenly became an endless struggle. There was not time to relax, just visit a friend or to enjoy life with the children. Our family life had turned into “daily survival.”
I have been told we are lucky – that I am better than some.
What lies ahead, I don’t know. But please I am not asking you to feel sorry for me.

I live at home but there is not much of love around. She doesn’t put her arms around me any more, I don’t ask her how she is feeling. I get scared thinking of my marriage as it has lost it’s bloom next thing that might happen might be being alone. The world considers me married – but am I? I don’t fit with the single men; I don’t fit with the divorced men. But no one seems to take care of me. Most of the time I am able to deal with this – but sometimes I feel lonely and scared.

The marriage as I had known it, ceased to exist. I had lost not only my best girlfriend and companion, but the best years of my life had been erased.

The Old Sailor,

January 16, 2011

I can't remember the old me

Dear Bloggers,

First of all I would like to say that I am sorry that I have not been around for a little while due to the fact that I have started my new job at another station in the company therefor I have to learn many new routes in an area that I am not to familiar with. The good old brain and body are having trouble to keep up with the new situation. In my old days I was pretty flexible and was able to learn new skills nowadays I have to make plans and work things out on paper.



Headaches I never had before

 
During the summer of 2003, I got into a horrible accident. Apparently slipping from the top of the stairs in our new house, I hit my head on the door of the fuse cabinet door and on the side wall. After 3 minutes of being out of this planet, I eventually recovered after a full year. Even though I was deemed "physically" healed, I felt that I was truly never the same. Not only had my demeanor and interests changed, but also it seemed as if I had become a completely different person after the accident. I thought it was very sad at the time, because the friends who had been close to me before were no longer close. I did not understand what they meant when they said that I had become a different person. Certainly, I realized that I had changed, but I could not remember the old me, so how comes that they could no longer treat me like the old "Jacob". I believed that this new "Jacob" was still the same person as before-that the inner soul with which they had become friends had never and, indeed, could never change. However, after reading Descartes' Error: Emotion, Reason, and the Human Brain, I regret the harsh judgments I made about "Jacobs" so called friends. Dealing with someone who has suffered from a tremendous change in personality is not as easy as one would expect. So how can I blame my wife as she probably can not addapt fully to the new me. And it makes me feel so sad but what can I do as I cannot find the “Old Jacob” back?


 body meets scattered brain


Brain injury is any injury that results in damage to the brain. For many people who suffer from brain injury, the problems associated with it become a permanent part of their lives. The problems that develop depend upon which part of the brain is injured. People can lose cognitive and motor functions as well as their ability to express thoughts and perceive their surroundings. The most unnerving consequence of a brain injury can be a change in personality. Often after being injured victims, like myself, develop an apathy and decreased motivation for life. Emotion can run to both extremes: a forever high, or as in the case of my friend, an absence there of. In society there is a difference in the response shown to someone who has suffered a brain injury that changes his or her personality, and someone whose injury has affected any other part of the body, or even other types of injuries to the brain. What accounts for this difference? If an individual loses a limb, he loses the function of that limb as well. It makes sense then that when an individual loses part of his brain, the function of that part goes too. This is in correlation with the statement, brain = behavior. Each part of the brain seems responsible for different behaviors, a fact that is reinforced when examining injuries to different areas of the brain and the varying results that occur. For example, if an individual suffers injury to their amygdala, he becomes calm and almost devoid of emotional ups and downs. People have therefore reasoned that this area of the brain is responsible for exhibiting anger and possessing violent emotions. If the function of a specific area of the brain is a defining characteristic of an individual's personality, then it is almost as if a new person develops, in place of the old, when an injury to that area occurs.

Modern Schizofrenia

"Jacob was no longer Jacob". The most frightening thing about my story is that, although I became somehow very different, I was for a long time not aware of the changes within myself. In class we have explored the nervous system and noted that there is a separate I-function involved, making one aware of the "self". With each class, it becomes more evident that this I-function has less and less control on the rest of the nervous system. Many times the I-function is not aware of things that the nervous system is doing until the person is told what his or her nervous system is doing, (i.e., when the brain makes up an image for the place of vision, the optic nerve, where no sensory receptors are located). So the question I have for people like me, who seem to be totally dissimilar people after suffering a brain trauma, is whether or not their I-functions are aware of the change in personality? People suffering from a personality change are unable to will themselves back to their old personality, even after their I-function is made aware. This furthermore, supports that brain equals behavior, because if behavior was independent of the brain, one would be able to change their personality back despite the brain changes. However, can we ever be sure that, because we are not mind readers, that even though their personality changes, they are not thinking in the same manner, as Descartes would argue? And if the individual thinks in an entirely new manner, would that really be enough to consider him or her a totally different person? I could not write it down less difficult than this.


That is how I feel

The likely reality is that when someone's brain is injured, the function is forever injured as well. There is no separation between mind and brain. Popular opinion of the mind's function is that it is a result of a brain process. Although when the brain loses a function, it is not unlike the reaction incurred in any other part of the body, but the more important query remains. Which characteristics do we use when defining a person's being? If I had suffered from a trauma to any other part of his body and survived, my friends would never have said that I was no longer the same person. Often when people undergo a personality change, their IQ remains unaffected by the injury. This is because of the various tasks delegated to the brain. The frontal lobe has evolved to be the main organizer. If people, like me, damage this region of the brain, their persona changes because this region is imperative for defining one's personality.


the other side of me

What, then, is the most important factor accounting for the way a person becomes defined; what has happened to make the various regions of the brain become so specialized? Has there been a gradual process through evolution that makes the loss of the frontal lobe harder to deal with than the loss of other regions of the brain, or other body parts? Or has the brain always functioned in this manner? When examining the responses to what appears to be injuries that are all serious in nature, it becomes apparent that some injuries are, indeed, more acute than others. Although an injury which is noticeable may on the surface seem more life changing, it cannot be argued that it is the injuries which are held within one's mind that are the most devastating to a person's being. Yes, they are all injuries to the body, but only those touching the brain have the capacity to change the "soul" of a person.

The Old Sailor,



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