Ten years after the fall

Dear Bloggers,

In 2003 we just moved into this house, I slipped and fell down the stairs. The doctor was called and as it looked bad as they thought i had broken my neck or spine, the ambulance service was called. The light was out in my head and things past around me in a far distance. The paramedics were rushing in, to treat a man who’d had made a crash landing from the stairs, when they spotted me lying in the middle of the hall next to the staircase.

I was conscious, alive and talking with a double tongue- but my blood pressure and pulse were normal, Only my head and left hand hurt. I can't remember much of that night. The next morning when i was woken up by the nurse. The doctor said that i should consider myself lucky.

It was 11am and I said i wanted to go home: but the medics persuaded her to stay at the hospital.'If you get a second chance in life, you ask yourself what you are going to do with it,' 

My head soon hurt so much that I was sent for a CT scan.
The scan showed I was suffering a contusion but there were no hematomas on the scan but there was a lot of activity across the brain.‘I’ll never know what happened. Last thing i remember that i was on top of the stairs. 

I was transferred to the head trauma centre at the local hospital in Heerenveen, and by the time my wife arrived from our home 15 minutes later, They gave her a status update that there might be a chance on brain damage and only time could tell.
Thankfully the paramedics did everything to save me, but my life nonetheless changed for ever that night.Before her accident, this fit and fiercely independent young man, who became friends with everyone became a lot more distant even to the ones the closest to me. Emotional there was no such thing as that one guy that I vaguely recognized from the past. The body was me but I was trapped in my own brain. And somehow I am still searching for the old me. 
 

  
I was now facing an arduous recovery. The injury left me with a blurred vision in the left eye, extreme exhaustion and what I would describe as a ‘constant heaviness’ in the head.
Now, ten years on, I need 8 hours sleep a night any less and I suffer from‘cracking headaches’ that can last for several days. And I am yawning all the way when i am behind the wheel. I also have occasional memory lapses. I am still hopeful things will keep improving, but there are no guarantees.'I could have kept a diary so I can remind myself I am getting better,' but no I didn't and it is hard to remember after all those years.
Every year, 21,000 people are admitted to hospital in the Netherlands with a brain injury. 

It’s likely that I've hit the wall with my head when I fell down the stairs or was knocked out by the hard floor. But the causes of brain injuries can range from falling down the stairs, to a stroke or heart attack that interrupts the brain’s oxygen supply.
‘I made a really good recovery they say, but often patients don’t do so well.
'It depends on the kind of injury, as well as the support they get,’ said my Neurologist.
When the brain is injured, it swells like any other body part, he explained.
‘But the skull is fixed — there’s nowhere for the brain to go, so it gets squashed. That’s why rapid diagnosis is needed.

‘The regions of the brain that control the basic functions that support life can get squashed out of the tiny hole at the bottom of the skull where the brain meets the spinal cord. That’s often what kills patients.’ More and more people are surviving brain injury and stroke, but the long-term consequences can be devastating. In my case my character changed.
The area of the brain that controls emotions may be damaged, as a result of which a patient’s personality can change. Rates of depression and anxiety are high, often leading to relationship breakdown. And that is something that still scares me.

Cognitive and memory problems are common, too, which can make your job impossible.
The brain moves when it is injured, which may cause the axons — fibres that send signals between brain cells — to tear, so signals travel more slowly.Tiredness is also a problem, as the brain must work harder in everyday tasks. The area controlling sleep can be damaged, too.

After leaving hospital, I spent at least four months at home, sleeping for much of the day and taking short walks. In the beginning I was falling over and I lied to my wife that nothing happened.
Gradually, the energy began to return. And before long, I hit upon a desire to take a long walk.Secretly, I made plans to get back to the point were i was before the accident. So with a lot of help from good friends. I learned most things back although calculating from the head is still not back, furthermore my character has still not changed back. I am more grumpy and I am missing the soft side of me. It is somewhere out there but I have not found it yet. I am afraid that somethings are not changing back.

‘If you get a second chance in life, you ask yourself what you are going to do with it,’
‘I wanted to get away from everything to think.’ In July, five months after the accident, I set off and got back to my working place again. Language was the main problem as English is the language used among an international crew. My wife had to do the talking as I could not find the words. Very irritating when you know what to say but simply cannot speak the language anymore. I was totally frustrated and went off like a mad man on my wife. Who had done the best way of English she could but there was no appreciation from my side only anger.

The doctors thought it would provide a goal, and a good rehabilitation process.
‘I think I was still slightly not with it. Lots of people have said to my wife, “I can’t believe that you don't let him go” but she said he is 35 and I still love him. I guess that she is longing for the guy she dell in love with. I was so focused on my own recovery that I forgot to work on my soft side. They couldn’t really stop me even if they’d tried. I’ve gone deep but believe me, I never been a quitter.’

It was a journey that would have tested even the most hardened. It has been hell week for more than a year in a row. Most people I met were doing just a section of the epic stretch. They were astounded that this young man was attempting to do the whole thing alone.
I practised from dawn till dusk on languages for six months, with only a few stops. I had to get back in the saddle and feed my family again.

I endured moments of ‘desperate’ loneliness and such a sore head that ‘if someone had offered to cut it off, I’d have said yes’. 
 

Some things, though, have changed for the better.
‘I don't think I’ve become a nicer person. Everyone in my family says they preferred the old me. 'It’s as if I’ve had an edge knocked off, I don’t have the energy to bulldoze through life anymore. ‘I’m less patient, and more openly emotional. I’ve got a calmness that I’ve never had before.’ Before I would fight with everyone and take up the discussion.
I prefer not to dwell on what happened that night it sometimes makes me curious, but I’m not sure I want to open that door again.

The doctors warned me that my brain injury can lead to depression, but I think it’s had the reverse effect on me. ‘From the moment I woke up that morning in hospital, I felt like I was drunk and really happy. ‘I’ve experienced depression, and it’s only when you nearly lose your life that you feel guilty that you ever had those dark thoughts that you wanted to end it.

‘You think: “Woah, hang on a minute! I actually want to stay alive.”



The Old Sailor,

How crazy can I be?

Dear Bloggers,

Last Friday I had a gentleman on the bus who had a difficulty with his speech, no problem in this case as I had a waiting time of more than twenty minutes. We talked about what had happened to him and how difficult this was feeling. He suffered from a brain trauma and lost a lot of his normal abilities and some people called him a nut as he rides on a special bike. He could not recall to his life that he had lived before and his memory gives only some flashbacks that he could put into place, he carries a picturebook with him to recognize his own kids and wife. And that must be terrible (unless you’re having a horrible wife and kids) After his story I drove back home and tears were running down my cheeks overthinking his emotional plea.

Once again I realized how lucky I have been when I tumbled down the stairs a few years ago and got my brain got fully shattered. We just bought this house and we had just moved in. That evening we just brought our daughter to bed and my wife was just pregnant from the second one. When I was on my way down I slipped on the top of the staircase. When I was picked up again by the ambulance personel and rushed of to the hospital I slowly came around again.I felt a sharp pain in my head. Before I knew what was happening I heard a loud high tone in my head and I had trouble with my balance and my hearing. I remember the moment that I was falling, but don’t recall hitting the ground or the wall whatever came first.

I lay unconscious on the floor until my wife called me. I woke to find people hovering around me, pinching me to get any reaction. They were asking me questions, and although I could hear them I was unable to respond normally. As talked with a double tongue. I was told that an ambulance was on the way, but I thought it was completely unnecessary and that I would be fine in a few minutes.The ambulance arrived and took me to hospital and all the initial tests were clear. My partner arrived and I said to her that I didn’t understand what all the fuss was about. Luckily a doctor ordered a brain scan, which is normal when they found trouble in my brain. The neck collar was bathering me the most as the expected that I had broken my neck.

From that moment on I felt like I was floating near the ceiling, looking down at myself, watching everyone rush around me. I was taken to another part of the hospital, where I had a neurologist waiting for me. Everything changed then and there.

My doctor informed my family that I had suffered from a cerebral contusion. Two days later I went downhill quickly. A neurologist advised my family and partner that the brain had been shattered that much and that my character might have changed and that I could be angry and frustrated. As I might suffer having trouble with finding words, mixed up thoughts and not being able expressing myself, memory loss could also give extra frustration.

I underwent multiple tests to monitor my progress, and I lived with a tremendous amount of pain. I pleaded with my partner to take the pain away, and told her that I would have rather died. She just kept telling me that each day would get better, and that I just had to keep fighting.



After the worst was over, my slow recovery began. I was in care for three days, and as my rehabilitation seemed to go well, I was send home to recover slowly to the normal me again as it was not that bad as they thought. But I did not feel at home at all as there was a strange driver at the wheel, so to say the captain of this ship went overboard and missing. I cried almost every day; the feeling of helplessness was awful. For the first three weeks I couldn’t stand for a long time and when I walked I was out of balance and I fell over my right side for a few times I lost some of my muscle definition. For the first few weeks after that it felt like my body had forgotten how to walk and I was dizzy all the time and very heavy headed.

But as the weeks passed, I realised I could only keep getting better. I still have down days, I still cry over nothing and I’ll forever be asking “Why?”, but then I remember that eight years ago I was almost dead, and today I’m almost back to normal. I still get tired easily and don’t sleep well, which are common symptoms of a brain trauma injury. I also get headaches every now and then. Unfortunately the brain injury has left me permanently missing parts of my character and calculating skills and my walking and balance still deteriorates when I get very tired.

I am one of the lucky ones. I survived. Three months later I was driving again. My brain is still recovering; I’ve been advised it could take many years to completely recover. But now I’ve quit smoking and I stress less. Life is too short and unpredictable.

I still find it strange that I am not suffering from more problems as the man that I talked to never got back to a normal speech again and he has to ride a tricycle as his balance is fully disrupted. I wish I could see inside his real thoughts if he felt lucky or would he have been rather dead? This question is until today still humming in my head :”Why me and for what purpose?”

The other day I saw a bumper sticker that said
“After head injury, life may never be the same.”
How can nine words have so much impact on one’s life. I find it
painful to look back at when life was “normal”. I feel scared when I imagine the future. So, I live one day at a time and sometimes even a minute at a time.

It started in April of 2003 when I had this cerebral contusion. The doctor said the recovery went well. What the doctor didn’t tell me was that I would probably end up with impaired judgment, emotional problems, and would not be the same person that I was before the crash.

The whole family rallied for my recovery. After months of physical therapy, speech therapy, occupational therapy, and eventually work adjustment training, problems were still so intense it was overwhelming. I was improving physically, but my emotions were gone, my love for the two of us was gone and I did not understand what was happening.

I first of all retired on disability and our income dropped € 30.000,- per year and we got more and more trouble to pay the bills. I had to find a better way of making a living again. So I ended up going to work full-time on a ship again.

Besides the tremendous burden of dealing with a person that felt himself a husband and father before. But now I was physically and emotionally impaired, the family did not have enough income to live on. So, I ended up getting more and more physical problems at night.

I left the old me behind and tied to get in line with this new me. And it is tough to deal with a father and husband who is full of anger, has emotional outbursts, did not care about what ever happened to him. Thinking back, I know I did not do the right thing, and I worry about the impact that this had on my oldest child.
But at the time, I was just trying to survive – buy food and make the house payment.
Life suddenly became an endless struggle. There was not time to relax, just visit a friend or to enjoy life with the children. Our family life had turned into “daily survival.”
I have been told we are lucky – that I am better than some.
What lies ahead, I don’t know. But please I am not asking you to feel sorry for me.

I live at home but there is not much of love around. She doesn’t put her arms around me any more, I don’t ask her how she is feeling. I get scared thinking of my marriage as it has lost it’s bloom next thing that might happen might be being alone. The world considers me married – but am I? I don’t fit with the single men; I don’t fit with the divorced men. But no one seems to take care of me. Most of the time I am able to deal with this – but sometimes I feel lonely and scared.

The marriage as I had known it, ceased to exist. I had lost not only my best girlfriend and companion, but the best years of my life had been erased.

The Old Sailor,