Bad days can have good moments

Dear Bloggers,

For now this will be the last blog written after work as I will write the coming ones from ashore Due to heavy pain caused by some kind of arthritis like problem, I have had a few bad days but I have enjoyed the good moments of them. It is just that the job is becoming too heavy for me at this point and I have to live on strong painkillers just to make it through the day. So I will call in sick for the next few months and hope that they can at least give me a diagnoses of what is hitting me so hard.


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I must say my days go pretty well. I'm past feeling burdened by every thought, sight, body movement, and interpersonal interaction. I've moved into a phase of feeling mostly like myself while still experiencing moments of muscle cramps and muscle aches each day. (Surprise!)
Only the nights are like a cheap horror movie, I wake up in the middle of the night due to this razor blade sharp pain attacks and they come without any pre-warnings. I have to get up and go for a hot shower too take the sharp edges off.



A wise and elderly person (my dear mum) told me years back when I was a little sailor, that even when it is though times you have to try and look for the sunny side of live, and it can be pretty clouded I can tell you.



"Sometimes it's hard for you to keep up the dance of daily life while you are processing your feelings. Nevertheless, you can do it, even if you are hurting inside. Keep in mind that your emotions are raw and tender now; they wouldn't survive in their present form if they were on public display. Don't judge yourself negatively; you'll know when to share your heart."

I read this once somewhere and saved it in my notes for later and look it became useful today .

I thought that was pretty applicable! I am keeping up that dance. From the outside, all looks normal with me. (I think. I hope!) And I feel fairly normal — for good, long stretches of every day — from the inside. Although it is sometimes hard to laugh, when you are in a lot of physical pain, and having a sunny character that is held back by medication.





But inside is definitely where I'm keeping what remains of those raw, tender emotions and cutting through pain of all parts that can move. I've reached a point at which I don't feel better letting my emotions out. Talking about them doesn't help, but hanging on a bit and nursing them does. I am simply not the person that wants to be someone they feel sorry for. I hold my head up high as long as I can.

All in all, I'd say time is doing its thing.

The Old Sailor,

What is the cause?

Dear Bloggers,

I am quite a humorous person and not really that old, ok I have a few grey hares but still I do not except that people stand up for me or feel sorry for me. It is just that my body is refusing to work with me. This means that I have to stop working for a while and that is even more painful for me. The frustrating part is that giving a diagnose is not that easy. I checked on several sites and forums and my goodness there are a lot of sad stories (for some it took more than 4 years to find a suitable diagnose.)






The following parts I found on the internet and now me and the doctors have to pick one of the diagnoses or what ?









Fibromyalgia is considered to be a syndrome—a set of symptoms that occur together but do not have a known cause. There are theories as to what may cause it, but there is not enough evidence to support any single theory. People—especially women—who have a family member with fibromyalgia are more likely to develop it themselves. It has been recognized as a medical disorder only since the 1980s.
Some theories suggest that fibromyalgia may be linked to:
• Oversensitive nerve cells in the spinal cord and brain. Oversensitivity may be due to changes in chemicals in the brain or spinal cord that regulate pain. As a result, the person senses pain more easily, and widespread muscle pain occurs.
• An imbalance in the brain chemicals that control mood, which results in a lowered tolerance for pain and may also cause an unrestful sleep cycle and fatigue. Once this happens, a person becomes less physically active, and the muscles and tissues become more sensitive and painful and more easily irritated.
• An imbalance of hormones such as cortisol and growth hormone. Their release is controlled by the pituitary gland and the hypothalamus. Imbalances of these hormones can result in fatigue, mood changes, concentration and memory difficulties, a lowered tolerance for pain, and other symptoms.
• A disturbance in the deep phase of sleep. Some chemicals, such as growth hormone, are secreted by the body during this phase of sleep. If sleep is disrupted, the body produces less of the hormone. Disturbed sleep may be both a cause and an effect of the pain of fibromyalgia.
Many people connect the beginning of their fibromyalgia symptoms to a certain event. These events can include an illness such as the flu, an injury or surgery, or emotional trauma and stress. An event of this type combined with other factors, such as increased sensitivity to pain and an ongoing sleep disturbance, may lead to fibromyalgia syndrome in some people.





Or is it Lyme disease?





Lyme Disease Symptoms
• The initial infection can occur with minimal or no symptoms. But many people experience a flulike primary illness or a characteristic rash several days to a few weeks following a tick bite.
• The flulike illness usually occurs in the warm weather months when flu (influenza) does not occur.
• The rash is a red rash that grows in size daily. It is called erythema migrans.
The U.S. Centers for Disease Control and Prevention (CDC) defines this rash as a skin lesion that typically begins as a red spot and expands over a period of days to weeks to form a large round lesion, at least 5 cm (about 2 inches) across. A red circular spot which begins within hours and is smaller is usually a reaction to the tick bite.
When the rash occurs at the site of the tick bite, it is called a primary lesion. Multiple secondary lesions can occur that are a reaction to the infection and are not due to multiple tick bites. All of these lesions can grow up to the to the size of a football. This growing in size is characteristic of Lyme disease.
• Left untreated, symptoms of the primary illness usually will go away on their own within a few weeks although the rash may reoccur.
• Later, additional symptoms may occur. The organs affected later may lead to the following conditions:
Facial palsy is paralysis of the facial nerve that causes the facial muscles to be uneven (This may get better without treatment.)
Nerve inflammation causes numbness and tingling in the arms or legs
Intermittent episodes of arthritis last about a week and usually involve the knee or wrist. These may recur over periods of weeks to months, and if the Lyme disease remains untreated, about 10% of people who have these episodes develop persistent arthritis in the knee. Occasionally, people with Lyme disease can present with an acute arthritis in the knee without a clear history of a rash or other joint complaints.
Inflammation of the heart (carditis) results in irregularities in heart rhythm.


I am all at sea ......................... lalalala, long live the painkillers.





All in all I am fitting nearly in both pictures, is there anybody that is not a 100% sure of what it is. But it is time to hurry with at least a treatment.

The Old Sailor,

Already today my body has become my enemy

Dear bloggers,

Yesterday was the day that I had to go to the hospital; hopefully they will come soon with some results as living with pain 24/7 is unbearable.
At least that is what I think.
As all the results of yesterdays examinations brought absolutely nothing.
My day at the hospital started at 09:30 and ended at 17:00 well I was fully in a sarcastic mood when we went home.
Only a lot of frustration was what they could offer me, and for **** sake it is eating me alive.



If they can at least tell me what my future will bring me, and even if it means that I can work only a few days a week.
It will give me something to struggle with.

Well this how my day looks like, when I am home.
I love my family and I know they love me.
A little understanding would go a long way.
It is 6:15 am. I stumble towards the bathroom as hot water is a relief and helps me to get in motion.
Already today my body has become my enemy.
Some days are worse than others, and I have not held myself back enough lately.
I have been enjoying my kid's playing outdoors too much.



The pain bothers me all night long every night, all day every day.
No position is comfortable.
I keep moving and trying to position my body so it won’t hurt so badly.
The alarm goes off, I wasn't asleep but it still surprises me.
When I stand PAIN! My feet hurt so badly, and it just goes on up my body like a tidal wave.
Sometimes it brings tears to my eyes.
I try hard not to let any one see me when it is this bad.
Just my wife but she is most of the time sound asleep.
Some days are worse and this day is worse.
I just keep moving, walking praying my muscles and joints will loosen up enough for me to enjoy the morning with my daughters.



I want to take my muscle relaxer and a paracetamol when they leave.
Words cannot describe what I feel; is it called fibromyalgia or polymyalgia or is it Lyme disease?
What ever name it is given it has had me in its grip since this winter.
Sometimes I don't know what causes it.
It takes me by surprise I may make a soft grunt or moan.



I am feeling horrible and it is coming out as I am grumpy and burst out in anger if they are not listening.
I know it is wrong to yell at the ones that you love.
But god it is difficult sometimes.
You know that no one wants to hear you moan or complaining.
The pain has control, I am exhausted, my whole body hurts, and even my eyes feel dry and gritty.
It feels as if my bones are cutting through my muscles, tendons and skin.
It feels as if I am metamorphosing, my muscles can no longer support my bones and are melting away.



I feel I am turning into something ugly; I don't want to go out unless I absolutely have too.
It hurts and I am so tired of this PAIN second after second, minute after minute, hour after hour, week after week.
I cannot keep up with housework; the rare visitor probably thinks that I am lazy.
I see the looks I get. I am not lazy. I am disabled (ugly word).



I work still a full time job at the receptiondesk of a ferry, raising together with my wife two daughters.
I did all of this at the same time.
I was strong, the busier I was the more I loved it, but all of a sudden I had to take it easy and it was the start of a life full of pain.
I say this to people who don't have Acute Chronic Pain; do not judge me.
I may look normal enough if you don't look close.

But know this you are fortunate.
I am in constant, unending, unrelenting PAIN.
It rules my life, my family’s life.
It seems I only exist at times.
My empathy to all of you who suffer as I do.

It took me a while too write this story, but it is worth it as my life is at certain times pretty frustrating.

The Old Sailor,

ABBA - When All is Said and Done

Dear Bloggers,

Typing is very hard at the moment, but the music keeps me going.
Soon I will be back with a bit of text

The Old Sailor,

A tribute to the Scottish fans

Dear Bloggers,

As a bad experience with so called football fans, did not make me look forward to a football trip of the Tartan Army, but I must admit that I was wrong this time, prejudging what was coming towards us. We are used to at least having a bit of trouble during the busy weekends.



But this a tribute to Scottish football Fans
Supporters of the Scottish national team, the so called “Tartan Army” are real fans and they are different than from most other football fans. They are not only loyal to their own country, but like also other countries and clubs. Although some supporters think a bit differently. The races between the superpowers of football are often degenerate into vicious fights, sometimes with murder and manslaughter as a result.



Last week more then 1300 Tartan Army fans travelled on our ship, the group was quite good organized a few minor issues could be solved pretty quickly. To me it was really sensational when they boarded the ship in North Shields, nearly all of them were dressed in kilt’s. As a Dutch man I had seen the country dress up in Orange but this was also a very nice picture. They travelled with us to see Scotland – Holland. Also commentaries around the game were fantastic as they expected some trouble.
The game between Netherlands and Scotland ended that Scotland lost with 3-0 Sufficient reason for Scottish fans after a big booze again separately, end up in a fight with supporters of Holland. If you could imagine. Because it often is. But that was not. There was no arrest.

Two police officers from Amsterdam said: How the Scotland supporters behaved, should be for all an example.



The highlight of peaceful (say brotherhood) behavior was the great party that came over Amsterdam.
It does not hurt anyone if you are being a bit drunk, but in a happy mood. Only a few pubs ran out of beer, but that was easy to fix.

Other supporters should be able to take an example to those of the famous Tartan Army.

The Social Charter prohibits any form of discrimination. Also this group is collecting more and more money for charity and solidarity funds. In 3 days time we transported 3,000 Scottish fans and it was in my eyes the largest peaceful migration by ship since the Second World War to the city of Amsterdam and a few days later the travelled back home.



Despite the defeat against the Netherlands was no incident recorded by the police on board we had only rather small issues but they were simply to resolve by extra security by talking to the person. The supporters of “the Tartan Army” having there own style and it is humorous and musical. The ship’s crew identified this style as the best in the world.

I served with pleasure this time, I got a different view on Scottish people now.
Well I stick to this phrase like always: “Live life as long it is there, pray for less fights, spend your last money on a drink and fuck if your life is depending on it.”

The Old Sailor,