Showing posts with label reuma. Show all posts
Showing posts with label reuma. Show all posts

March 16, 2009

If pain is taking over your life.

Dear Bloggers,

What if pain is taking over your life.
At the moment I am living life with a lot of pain, my doctor got finally realistic and sends me to specialist of internal diseases.
I am just over 40 and my body is fully working against me. In the blood tests that were done, once again there was nothing found and I am so not amused.
All my joints are hurting, my neck, my elbows, my knees, my wrists (off and on in various finger joints) and one of my ankles.
The year has just started and it is a painful beginning.

About 12 months back they discovered that I have Tietze's syndrome.(Costochondritis)
I walked around for almost 2 years with a nagging pain in my left side at my 4th rib from the top counted.
First they thought that it was pain of the recovery of my lung after the pneumonia that I've had.
Because I was still fairly unfamiliar to the intense pain it caused, in the beginning I was a few times rapidly rushed to the hospital with an expected heart attack.
The symptoms seemed to be very similar and the pain at the left is so stinging that it just feels like you are going to die.
The hospital found out, after a number of examinations that there was nothing wrong with the heart.
But what it was, they were not entirely sure.



To my great surprise I had a number of things that I no longer used as such as my garden tools.
This kind of things I have to suffer with an intense pain that will bring me one or two days completely down.
When the diagnosis was made that I had Tietze, I started searching the Internet and came to the discovery that I was not the only one suffering from this.
I ended up on the site of A. G. Hol: www.tietze.nl
I discovered only now that it is something that has been there for years and I finally figured what was going on with me.

In winter I have trouble getting up on my feet and I'm stiff from head to toe.
All my moving parts are hurting like hell.
I am like a very old man when I am at the beginning of my day.
To give you an example of how my day is:
“You feel like having a heavy flu than you can also sense the pain from the muscles, also the heavy feeling and being extremely tired is part of it.” (I fall asleep in the middle of the day, I get sleepy out of nothing.)
I am simply falling asleep from one moment being fully awake until the next moment I am falling into a deep sleep.



However, the severe pain is getting sharper and tears my soul in two.
My fingers do not work with me and they are so stiff and painful, and my daughters, I can not help them, for example, a biscuit packaging I can not open it.
But whatever is coming on my path, I also have to learn to accept and that fibromyalgia is going to be part of my near future, and again I just have to get used to it.

Life is a path that is crossed by pain and love.
Only a pity is that I see more pain than love.
Happiness comes in small pills, who are also called painkillers.

The Old Sailor

December 2, 2007

Als de pijn je leven gaat beheersen.


Als persoon ben ik blij van aard toch heb ik de laatste paar dagen niet echt kunnen lachen. Het vochtige weer speelt mij parten, elk jaar weer als het erg vochtig is in de lucht worden mijn handen en knieën stijf. Ik verplaats mij als een oude man en de reumatische klachten nemen de overhand. Dit is iedere keer weer een pijnlijke gewaarwording. Ik merk dan nu ook duidelijk dat de pijn mijn leven beïnvloed. Ik leef op pijnstillers waardoor meer dan de helft mij volledig ontgaat. Op het schip heb ik minder problemen omdat de lucht aan boord zeer droog is door de airconditioning en als ik het even redden kan ik een uurtje ga wandelen. Ondanks de pijn is bewegen goed voor je heb ik gelezen op een reuma site. Ook mijn syndroom van Tietze speelt mij parten. De ribben zijn altijd in beweging. De pijn snijd als een scherp mes dwars door je ziel, en slapen is ook lastig omdat ik jarenlang op de pijnlijke zij heb geslapen. Hierdoor wordt je ook niet blijer en reageer je het ongemerkt af op je gezinsleden. Ook Bloggen is moeilijk omdat je je vingers niet optimaal kunt gebruiken.

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