Life is a bitch and I.......

Dear Bloggers,

Have you ever wanted to shout, scream, yell till the world knows about the pain you are going through? 

My wife has changed a lot in the last year and yes we all have to get used to the fact that she is standing up for her rights at this moment she is finding her new boundaries and not everyone is pleased with her or her attitude. We end up in fights and most of them are about nothing at all. Last night we had another one when we were cleaning in the kitchen and was explaining me that I was doing it wrong. I was tired and easily fired up as I felt that she needed to kick me down. I totally lost it and I shouted and yelled at her. There wasn’t any effect.

I nearly cried but my heart still felt pain. I was hurt. My emotions needed an outlet. An outlet to express sadness and hurt. Especially when this feeling of hurt was a result of one’s own family members bad temper, the mind just froze and the heart experienced a complete maddening sense of sorrow. What happened to us am I not the man that she loved anymore. Am I just treated like any other pet that lives here? I poured a cold water shower on my head. It helped me calm my nerves and move on with the rest of the evening. 

Tears still continued to flow when I was lying in bed but maybe after yesterday I actually realized that no, this is not the time for self pity. Living in 2013 and crying about and for people who treat you like dirt?? 

I guess I need to just walk away from them. There isn’t any point living for them. A dog’s tail can never be straightened. Never!! But this doesn’t mean I am gonna allow people make my life miserable. I have always been there to support them in their needs and all I get in return is anger and hateful words.
No, this should come to an end as my life is much more important and blessed to surround myself by such people. I was preparing tea in the morning and thinking “it’s gonna be her birthday in April, why not plan a big birthday bash.” I am sipping tea and thinking about party ideas. Hmmm.....let us see how many friends we have left after all those years.

One hour later I hand over the land-line phone to her and suddenly I am faced with angry glares. I shouldn’t have handed her the phone. I am not supposed to think for her. How on earth am I supposed to know which one needs to be rejected and which one she is gonna invite. She didn’t tell me anything before and how should I know this? 

I always thought I’ll try and be the best husband as I can be. But I guess no amount of efforts I’ll never reach that stage… For her an ideal husband means “No interference with me and just listen to me.” but yes, when I am in need of help you should be there, No excuses!! 
I don’t think that I am the right person for her anymore as there is hardly anything left of what we had. We loved to do things together and had a lot of fun doing all kinds of jobs around the  house. Just to make it our own project. 

The relation is suffering of it as well. That’s what is hurting me the most but by the time I poured ice cold water on myself and got ready for bed the feeling of hurt slowly evaporated and blogging about it made me feel less disappointed. 

I didn’t do anything wrong. Being yelled at for not being handy enough cleaning the kitchen pisses me off and without knowing anything about her bloody mood swings as we are not doing enough around the house. If every move that you make is criticized you start moving less and less. It sounds crazy but it absolutely isn’t my fault. 

The Old Sailor,

Are you still able to work wit FMS

Dear Bloggers,

For nearly everyone I know with Fibromylagia, it is not the pain, or the fatigue, or even the restless sleep that frustrates them the most, it is the feeling of no longer being productive or able to contribute to a normal society. Also the misunderstanding of the illness by other family members leaves deep emotional scars. How many of us have had to quit our jobs or restructure our lives completely because of this illness? Sorry it is not an illness but a so called syndrome and it is not recogneized by the beneficiary services. It is not a health issue but a mental problem. Most of us I am sure. And for those of you still maintaining your lives and careers, it is through sheer strength and will that you are able to do so.

For myself, Fibromyalgia has forced me into a change. I was working in a passenger ships reception at a high-pressure, fast-paced ferry company when I first was diagnosed in 2009. For months I tried to hang onto the position I had spent several years building within the company, but ultimately I had to let it go. It was not an easy choice to make, but it definitely led to an improvement in my life and allowed me to manage my symptoms without the stress and pressure I faced daily as a receptionist. And yes I loved my stressy job.

I became a bus driver and worked for a temps office, able to set my own schedule, and as long as I met or exceeded my and their goals, I could work as much or as little as I needed. Some weeks I worked full-time, others I put in less than 20 hours. My position required me to drive a lot, but all of my rides were within driving distance so I became a master at routing myself and to take advantage of my "good" days and I had enough breaks to recharge for the next run. The planner knew that he could count on me if he needed someone to fill in.

For several years I was pretty succesful and even thrived in my ships career. At the time it was a very compatible career for me. Then in 2009, as I was sailing to one of my destanies, I was hardly able to get out of my bunk, I waved it away as it was nothing serious and I probably would get the flue. And the comfortable life I had spent the last ten years of building up my carrer was shattered in an instant. Even though I had been living with Fibromyalgia for ten years, I had no idea how relatively manageable my symptoms had been. Sure I had some bad days and debilitating flares, but this was only in the winter season. But nothing like I began experiencing after this bloody morning.

So once again I was faced with a decision. I knew I could no longer manage my sailing territory and my health. I could have pursued the opportunity to go on disability, but I was afraid if I allowed myself to be labeled "disabled" I would start to believe that I no longer had anything to contribute. When I ended up at the UWV office they straight away told me that there are no benefits for this syndrome called FMS. This was puzzling me as the Danish government declared me not able to work a full time job and I was also entitled to a disability pension. It made me angry and confused as I was sitting in between two different opinions. And I made the choice to work as a bus driver but in my own speed. Please do not get me wrong I honor and respect those of you who have and need the security of disability, it was simply my personal decision to eliminate that as one of my choices. So what to do then?

For the first time in my life, I decided to follow my passion for driving. I didn't just wake up one day and decide though. It came about out of the natural progression of me trying to manage and improve my health. Things were pretty dark immediately after my job loss. As the weeks and months past, I continued to feel worse, not better. My despair led me to go and do the driving course and exams needed to become a bus driver and to get my license of course. I started driving for the summer period, and this continued until the 31^st of December last year.Unfortunate the contract was finished. 

Thinking about my health and wellbeing, and then a weird thing happened - my life began to come back into focus again. I felt like I had a voice and a purpose again. And then slowly, I started for an other region in the same  company again. Maybe this was not the best choice that I have made. As all other temps I am just another number where no one is happy and among the ones with a steady job sickness is up to more then 10%. I would call it a low social people management close to modern slavery. 

It is by far my least lucrative career, but that doesn't even matter to me. I am healing through my driving, I am reaching out to all of you that there is always something that you still can do, and I am doing something I am passionate about. So do I thank Fibromyalgia for bringing me to this spot in my life. I don't think I will, even though I believe everything happens for a reason, and that I am exactly where I am meant to be, I also think my path was a little too painful for me to be grateful. Maybe I will just be grateful that I made it through.

So this is my story, but I am really curious to learn about all of you. Are you able to work while managing your Fibromyalgia symptoms? Do you simply push through it, or have you made adjustments to allow for the unpredictable nature of Fibromyalgia? Have you had a career change? Are you on disability? And if you are on disability are you still able to earn a supplemental income? Any thoughts you have on working with Fibromyalgia, I would really appreciate if you shared them in the comments. As you might have guessed I am planning to find another place to work again, all in quest for better health and wellbeing. 

The Old Sailor,

Fibromyalgia is a nasty condition

Dear Bloggers,

This is my second year of being diagnosed with Fibromyalgia and I must say that I have picked up my “new life style” quite well. Eventhough pain is my biggest enemy, I walk up straight and smile to my passengers. I never realized before that deep down in me there has been a load of stress. By controlling my life in a different way and doing my things one step at the time, my pain and all the other symptoms became slowly bearable.

The Horror of Fibro headaches

As Fibromyalgia is now the accepted name for a condition that used to be known as musculoskeletal pain syndrome. The name may be updated but the diagnosis still remains a controversial one as there are still those in the medical community who discount the validity of the condition. And that is a shame as many people like myself who want to carry on are being turned down in so many ways. The controversy arises over the non-specific nature of many of the symptoms as well as the psychological aspects of the syndrome that have been observed. It is hard to find a suitable job if you have to do it on your own. It takes a hell lot of energy that you simply don’t have.

The syndrome is classified as a rheumatic condition, related to arthritis, with the major symptoms being muscle and joint pain over large parts of the body and fatgue. Usually these symptoms are also accompanied by a lowered pain threshold, anxiety and depression. The lowered pain threshold is the major reason why so many remain skeptical over the validity of Fibromyalgia as a specific disease. People with arthritis get help from the authorities and they can get a contract for working a part time job the other half is paid by the government. At least you can be there for your family and function on full power at your job.

The "New Me"

The disease affects roughly ten times more women than it does men but science has yet to determine why that is. One theory is that it is not actually this imbalanced but that men remain undiagnosed or misdiagnosed more often than women do. Perhaps with further research the truth will be found but until then, it appears to affect far more women than men. My thoughts are that men are to affraid to loose their job and their face. If you live in a small community you are quickly called lazy and that f***ing hits you like a hammer.

Generally fibromyalgia sufferers start off with widespread muscle aches and joint pain, usually accompanied by debilitating fatigue. Some people will also experience muscle twitching or burning for no apparent reason. These symptoms often appear at the same time as depression and sleep disturbances.

There are other symptoms associated with fibromyalgia but most victims will have only some of them, making each person seem to have a different problem (another reason for misdiagnosis). A person may experience several of these symptoms at the same time during acute periods while experiencing none during other times. Common complaints include stomach pain, dry mouth or eyes, chronic headache, anxiety, restless legs syndrome, stiff joints, incontinence, sensitivity to hot or cold. Most of these things I recognize as my own in my case I did not experience the restless legs and I very seldom I face anxiety, therefor I do get cramped legs in restperiods and I cannot stand overcrowded places anymore.

Reaching a diagnosis can be a long process as there are no specific tests to determine if you have fibromyalgia. In my case it went quick it only took seven months due to the pressure provided by the Danish government. Normally this process takes a whole year in the Netherlands. It is more a process of eliminating everything that it is not, before determining what it actually is. The doctor will usually do extensive blood tests to rule out many other conditions. Of course, you also must meet the diagnostic criteria which will always include widespread pain that lasts for three months or longer. That means the pain will be on both sides of the body, above and below the waist and will be present in at least one of the chest, neck or back.

There isn’t any specific treatment for fibromyalgia as a condition. Instead, treatment options are all aimed at relieving specific symptoms. Typically a sufferer will be prescribed a medication to reduce or control the pain as well as an antidepressant to deal with the emotional aspects of the disease. I refused to take the antidepressants as I hate all this medication that I get prescribed. My doctor was surprised on my reaction “less synthetic crap is better for the old body.” Behavioral techniques such as stress management are often used in conjunction with the medications as stress has been shown to aggravate the condition and bring on acute episodes.

Some alternative therapies have produced success in some patients but they have not been subject to many verifiable studies. Therapeutic, deep tissue massage has been known to be a help in relieving the pain, at least temporarily. Some also find relief through acupuncture, hypnosis and even chiropractic manipulation. I found my way to get relief by daily Tai Chi practise some basic moves and meditate on free moments to bring the mind at ease. Stress is the enemy. Even I am a huge fan of a love life the pain is always in the way. During foreplay I have to take breaks as my body gives up. And my wife is not the easiest one to please as she loves the full attention during this beautiful hobby.

Whether you choose to go with medication, alternative therapies or a combination of both, there are some things you should do to help your body deal with this sometimes devastating condition. Eat a balanced diet so that your body receives the nutrition needed to support repair and building of muscle tissue, exercise regularly and get enough sleep each day so that you will be in optimal health in order to deal with the affects of this musculoskeletal pain syndrome. Enough sleep is sometimes tricky if you have to start early shifts and your partner calls you lazy when she finds you sleeping on the couch. I feel so useless in many ways as I am not the man that I was a few years ago. Nothing was to much for me and I was never ever tired. Nowadays I wake up tired and on my free moments I feel more dead than alive.

The Old Sailor,

Food Fight in Supermarket

Dear Bloggers,

Hooray it's almost Christmas time and therefore a more elaborate dinner.
If I do go shopping it is obviously seriously crowded in the supermarket and the shop is well prepared for this extra busy days.
I quickly count about twelve young lads who are filling the shelfs.
But it is also logical because the last few days were related to the heaps of snow and not many people went shopping.
It was a tragedy at the car park because almost everyone is coming now with their car and the parking is not very well shoveled.

After twenty minutes I finally managed to secure a place eventhough another driver thought otherwise.
But when it comes to driving and I am sure that I am standing in my right, I'm too quick for them all.
The brutal party swears and grows behind the wheel and I wish him to have some joyfull days.
He tears away and nearly ramming an unsuspecting oncoming car.
I have doubts on the humanity and peace on earth feeling this year.
But time to move ahead and get a shopping cart.

In the shop you just slowly move yourself from A to B, not really my thing because I always shop with a purpose and now I know where to find everything here.
Well but then I have too take it easy today because winding yourself up it doesn't help at all.
If I drive into the isle with softdrinks and put my stuff in my cart, is the guy who fills up the drink being called by a colleague to come help him at the meat department because there are a couple of men fighting.

Astonished, I follow the two young comrades. As a former night watchman on a vessel you are in these situations ready to lend a hand if it might escalate, but when I arrive at the “crime scene” the situation is under control and the manager of the store is admonishing the two men.
This otherwise very friendly man speaks to the dumb duo.
But what exactly happened and what led to this absolutely senseless struggle?

Two men went to attack each other during an argument about a supermarket product that apparently was important for their Christmas dinner.
The bizarre battle took place in a supermarket nearby the village where we live.
A somewhat older man and a man in his forties both wanted the same article from the refrigerator shelf.
This led to a struggle that was getting ridiculous and was terminated when the older man gave the man of forty a punch in the face.
The man came to fall and was immediately absorbed by the massive group of shelf fillers and the manager. But the damage was already done as the older man has probably got a broken jaw and the man of forty a black eye, as they both have something to be proud on and a peaceful Christmas to accommodate.

And this time ode to the young people that very calm and strictly pulled the fighters apart.
The two bastards probably had to seek treatment for their minor injuries.
It surprised me very much that the Christmas emotions can run up so high on a piece of meat.
But as I am a creative “cook”and if I would run into something like this, then I have just bad luck and I will just make something else.

Well let's hope that it will be a peaceful Christmas and a peaceful New Year yet.
For even the newspaper, I am not getting happier because I read that a bus company that hires security guards to prevent cases that the drivers are being regularly robbed and attacked.
There are too many people who think you do not have to work for money and trying to get money this way.

Merry Christmas and a Happy New Year.

The Old Sailor,