Dear Bloggers,

I'll tell you how I look at my companion for life called fibro, it became a part of me in my daily life. Acceptance is difficult but as time passes it is becoming easier and by falling on your face you learn things the fastest way. Anxiety is a poor guide so if it is diagnosed then go and search for positive stories on the Internet. What struck me in the beginning that there were much more negative than positive stories to find. But with a little bit of effort put into searching I was able to find them. I have experienced it from the beginning as a terrible thing and the capriciousness with which it all comes and goes makes it difficult to control. Yet I have at some point found some rest and made a good deal with my body. I'm less anxious to do things and I started with a physio fitness program was tailor made for me. In the beginning I had to get used to the idea to do anykind of sports as in my opinion this was absolutely impossible. Still, I put on my "naughty" shoes (sneakers) and gave it a shot. But after the third lesson it was disastrous because my body totally refused to join these days and seriously frustrated I returned home.

Knocked out by FMS

Many people are told by "well-meaning friends/doctors" just get out & exercise. Yes, exercise is very important but it is not a cure, nor is lack of exercise a cause. And it is very possible that they may only be able to do a few light stretches, or to walk one block at a time. The exercise routines I used to do are no longer an option for me. Even athletes who start having problems with FMS have to start at the bottom. It is very frustrating. Exercising causes major pain so it is very important to start slowly. Another problem with FMS is the delayed reaction. Sometimes pains from "over-doing it" don't hit until 24 to 48 hours later. So it is very easy to over-do. You may think you are doing ok, but then the next day it will hit you & knock you flat. Despite the pain it is important to find a routine because it will help you cope and deal with your complaints. If you start slow you will eventually build up to where you can do more & more. Proper counseling is very important, but more importantly you know yourself what you can handle. Your trainer is there to tell you how you do things the right way to practice. The taxation of your body you should try.

My best friend and companion for life: Fibromyalgia

I found peace only when I started practicing Tai Chi and I was told to improve my situation and accepting you are having a disability. A Tai Chi practitioner who ends up in a combat situation, is not so much concerned with eliminating the adversary, but to improve their own position. This requires often initially reported to give up something first. The Tai Chi practitioner does not experience this as a loss but as an investment. By accepting it, it will create a greater freedom of movement within a better position than relativly can be taken by the other. Then the other must give up his position is not as objective but as a side effect experienced by both parties. (There is not so much as a loser in competition, but a recognition of being the better half in the other). For me this was the way to deal with the person that I've become now. It's not really complicated if you know what you can do, and your borders are not your limitations. Also this is a form of acceptance.

Fibro-fog is another aspect that can really throw a person off. Fibro-fog basically means that you can not think clearly and that is sometimes quite difficult.This ranges from doing "stupid" things (like putting the salt & pepper in the refrigerator and putting the milk in the cupboard or forgetting words you have used since kindergarten) to very severe fibro-fog where you can't function (write checks, drive a car, cook dinner, follow a conversation, etc). I often suffer from memory problems as some of the files that exist on my hard drive are erased especially many memories from the past. But some things excist no longer and happened shorter than one year ago. Yet I know I do here to save the story to run. With statements of "Well, help me out on the road."Many times when people are experiencing fibro-fog they don't even realize it! It can be so severe that people may think you are getting dementia. Fibro-fog can occur in short periods here and there, but sometimes days or weeks, even this is different from person to person.

Well I stick to this phrase like always: “Live life as long it is there, pray for less fights, spend your last money on a drink and fuck if your life is depending on it.”

The Old Sailor,


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