Are you still able to work wit FMS

Dear Bloggers,

For nearly everyone I know with Fibromylagia, it is not the pain, or the fatigue, or even the restless sleep that frustrates them the most, it is the feeling of no longer being productive or able to contribute to a normal society. Also the misunderstanding of the illness by other family members leaves deep emotional scars. How many of us have had to quit our jobs or restructure our lives completely because of this illness? Sorry it is not an illness but a so called syndrome and it is not recogneized by the beneficiary services. It is not a health issue but a mental problem. Most of us I am sure. And for those of you still maintaining your lives and careers, it is through sheer strength and will that you are able to do so.

For myself, Fibromyalgia has forced me into a change. I was working in a passenger ships reception at a high-pressure, fast-paced ferry company when I first was diagnosed in 2009. For months I tried to hang onto the position I had spent several years building within the company, but ultimately I had to let it go. It was not an easy choice to make, but it definitely led to an improvement in my life and allowed me to manage my symptoms without the stress and pressure I faced daily as a receptionist. And yes I loved my stressy job.

I became a bus driver and worked for a temps office, able to set my own schedule, and as long as I met or exceeded my and their goals, I could work as much or as little as I needed. Some weeks I worked full-time, others I put in less than 20 hours. My position required me to drive a lot, but all of my rides were within driving distance so I became a master at routing myself and to take advantage of my "good" days and I had enough breaks to recharge for the next run. The planner knew that he could count on me if he needed someone to fill in.

For several years I was pretty succesful and even thrived in my ships career. At the time it was a very compatible career for me. Then in 2009, as I was sailing to one of my destanies, I was hardly able to get out of my bunk, I waved it away as it was nothing serious and I probably would get the flue. And the comfortable life I had spent the last ten years of building up my carrer was shattered in an instant. Even though I had been living with Fibromyalgia for ten years, I had no idea how relatively manageable my symptoms had been. Sure I had some bad days and debilitating flares, but this was only in the winter season. But nothing like I began experiencing after this bloody morning.

So once again I was faced with a decision. I knew I could no longer manage my sailing territory and my health. I could have pursued the opportunity to go on disability, but I was afraid if I allowed myself to be labeled "disabled" I would start to believe that I no longer had anything to contribute. When I ended up at the UWV office they straight away told me that there are no benefits for this syndrome called FMS. This was puzzling me as the Danish government declared me not able to work a full time job and I was also entitled to a disability pension. It made me angry and confused as I was sitting in between two different opinions. And I made the choice to work as a bus driver but in my own speed. Please do not get me wrong I honor and respect those of you who have and need the security of disability, it was simply my personal decision to eliminate that as one of my choices. So what to do then?

For the first time in my life, I decided to follow my passion for driving. I didn't just wake up one day and decide though. It came about out of the natural progression of me trying to manage and improve my health. Things were pretty dark immediately after my job loss. As the weeks and months past, I continued to feel worse, not better. My despair led me to go and do the driving course and exams needed to become a bus driver and to get my license of course. I started driving for the summer period, and this continued until the 31^st of December last year.Unfortunate the contract was finished. 

Thinking about my health and wellbeing, and then a weird thing happened - my life began to come back into focus again. I felt like I had a voice and a purpose again. And then slowly, I started for an other region in the same  company again. Maybe this was not the best choice that I have made. As all other temps I am just another number where no one is happy and among the ones with a steady job sickness is up to more then 10%. I would call it a low social people management close to modern slavery. 

It is by far my least lucrative career, but that doesn't even matter to me. I am healing through my driving, I am reaching out to all of you that there is always something that you still can do, and I am doing something I am passionate about. So do I thank Fibromyalgia for bringing me to this spot in my life. I don't think I will, even though I believe everything happens for a reason, and that I am exactly where I am meant to be, I also think my path was a little too painful for me to be grateful. Maybe I will just be grateful that I made it through.

So this is my story, but I am really curious to learn about all of you. Are you able to work while managing your Fibromyalgia symptoms? Do you simply push through it, or have you made adjustments to allow for the unpredictable nature of Fibromyalgia? Have you had a career change? Are you on disability? And if you are on disability are you still able to earn a supplemental income? Any thoughts you have on working with Fibromyalgia, I would really appreciate if you shared them in the comments. As you might have guessed I am planning to find another place to work again, all in quest for better health and wellbeing. 

The Old Sailor,

Did we all become slaves to the Rat Race?

Dear Bloggers,

You may consider me harsh for making such a statement, but the truth remains: the majority of the world will remain slaves to the "Rat Race" system for the rest of their lives. I speak with a lot of people on a daily basis who say that they are serious about starting their own Home Based business, but they never actually take action to begin the process. As I thought over the subject, trying to figure out "what was wrong with people", it suddenly came to me: We all have been trained to think like slaves!

From the time we were school age children, we were taught to go to work for someone else-in hopes of getting paid for our blood and sweat at the end of the week. We had no control over what the employer "decided" to pay us, nor did we have any say as to what type of hours we would work. We were taught to be "dependant" on others. This type of mentality is no different from the mentality of a slave. Slaves were forced to conduct hard labor for little pay (if any), while the "master" made a fortune, took exotic trips, and sent his children to private schools. For those who may think that I'm going overboard with my analogy, consider this: Who tells you when you can spend time with your family? Who tells you when you are "eligible" for time off? Who dictates to you how long you can take a lunch break?

 Are you starting to get the picture? Most people don't even realize that they are snared by the way they perceive. If a person doesn't believe or know that they have a problem, they won't consider getting treatment for the problem, thus, remaining in their sickening state until they die. Why not start a home based business for yourself? Why not take control of your own income, rather than let someone else tell you what your worth? Doesn't it make sense that you should be the one who decides how much you will be paid? Shouldn't you decide when your going to spend time with your family? If you desire to change the course of your life, you're going to have to change the way that you think. 

Entrepreneurs think different compared to employees. Employees complain that "there are no jobs". Entrepreneurs create jobs by starting businesses.
I am aware that there are some people who will never change the way that they think, no matter how many offers I make to them or how many blogs I write, they will continue to embrace the "employee" mindset. I don't mean any disrespect to those who decide to work for a living: there's nothing wrong with that. 

 

After all, I figured it out the hard way and now I am stuck with this bloody disease called fibromyalgia. 
For me there has never been a reason to give up. I started my life in a different way and became a parttime bus driver next to my job I am trying to start up a webshop but first I need to get some brilliant ideas for entering the market. I need someone to program my computer. I can go on-and-on but I think you get the picture. Which side of the road are you on? Do you want to have a different life or, are you satisfied with your safe secure job and nothing else?

If you're ready change your life and get a "better life",

The Old Sailor,

Life is fantastic everyday is a new gamble

Dear Bloggers,

Life is just one big gamble - I am convinced of it. Although such as philosophy is generally alien to me, I found myself in a situation the night prior to beginning this blog which really got me thinking.

It was Friday evening. I had stopped working only to sleep in the previous two days. I had arranged to phone a friend and grabbed a beer from the fridge - something unfortunately came up, however, and he couldn't talk to me as he had to work.

Alone, therefore - and tired - I began seriously rehearsing my drinking skills and smoking one cigarette after another (outside the house,  of course!) 

When I heard the familiar strains of, "The Gambler," by Kenny Rogers, it was probably the catalyst which really got me thinking about the meaning of life.....

Yes I am a smoker and a drink is always welcome when I don’t have to work. I try to enjoy life as much as I can but it is not always easy.

There are of course tens of millions of people in this world - if not more - who enjoy a social drink now and again. Whether it be a few beers, a couple of shots of whisky, or a bottle of wine with a meal, drinking alcohol can be a way of relaxing, unwinding and mixing with friends and family.

The problem is, of course, that the practise of drinking alcohol can so easily get out of hand. Social drinking can become binge drinking, then acute alcoholism if it is not properly controlled and restricted to moderation. Excessive alcohol consumption sees us taking a very grave risk and essentially gambling with that most precious commodity and the highest stakes of all - our health. Unlike drinking alcohol, smoking cigarettes or any form of tobacco is not acceptable, even in moderation. Every time we light a cigarette we are damaging our health and gambling with our very lives. Government agencies and health authorities across the globe tell us the damage we are doing to ourselves in this way and the risks we are taking, yet so many of us still happily hand over our hard earned cash and give the wheel another spin...

 

On the other hand i think who wants to become over eighty when there is no pension left and you have to live in poverty. I hope that the taxes will drop then I can think of quitting. It is a huge income for the government as the taxrate is enormous. If all smokers would quit on the same day many countries would get bankrupt.

In my job as a bus driver I see people crossing streets every day and yes most of them are the suicidal type. How often do you cross the road when the traffic signals, in one way or another, tell you to wait?

Do you view a red light as an inconvenience - a challenge, perhaps? Do you look carefully around about you and decide that it is worth the risk - the gamble? Have you ever attempted to cross the road in this fashion, only to hear the blast of a horn from an angry motorist whom you failed to notice? Do you realise the risks you are taking every single time you perform this action? Do you get a thrill from the uncertainty?

To cross or not to cross?...Heads or tails?...Higher or lower?...Red or black?...What will it be this time...and what will the result throw up...?

Every now and then we gamble with our lives, the question is who has the better cards.

The Old Sailor,